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Living with Parkinson's Disease - Meet others & come say hi
Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.
Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
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If you have a teaching hospital anywhere within striking distance, you might do better with their Movement Disorder Department. Switching from a local neurologist to the university hospital near us made a positive difference in my husband’s treatment. I’m sorry about your back pain. Good luck.
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1 Reaction@jaybee51 I am quite interested in your comments about Pregabalin. I have been taking it for years for another condition, long before I was diagnosed with PD. I had no idea it can cause problems with dopamine production. I will be seeing my neurologist next week and will ask him what he thinks. I can probably go off it.
My neurologist is excellent, and I hope you can find one that knows how to treat PD and pain! I am sorry you have been treated so poorly. Sometimes, we don't have many doctors to choose from, so I hope you will find good ones!