Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

pamelaz | @pamelaz | Nov 21, 2022

In reply to @peggioh "This is invaluable information, Chris. Thank you!! I will start looking. Peggy" + (show)

Does this help with bad neuropathy. I don’t even have diabetes’. But the burning, sharp, tingling, electric pain are horrible.

luckyd2002 | @luckyd2002 | Nov 21, 2022

In reply to @pamelaz "Does this go by another name?" + (show)

Amitriptyline is older but effective medication for anxiety and depression at higher dose may be generic name also?
Tizanadine is another medication that helps reduce and deal with neuropathy symptoms.
Also for my feet the biweekly pedicure and massage comforting and relaxing and the foot roller.

luckyd2002 | @luckyd2002 | Nov 21, 2022

In reply to @pamelaz "Does this go by another name?" + (show)

Unsure

feetnumb | @feetnumb | Nov 23, 2022

is anyone trying to massage using the device such as https://www.carpalrx.com ?

johnmacc | @johnmacc | Nov 24, 2022

In reply to @luckyd2002 "Amitriptyline is older but effective medication for anxiety and depression at higher dose may be generic..." + (show)

I have a heated vibrating ball I roll my foot on for 10+ min each am then switch feet. I use a tennis ball on the off foot. I get some pleasure and relief from both. Johnmacc

annelise | @annelise | Nov 26, 2022

In reply to @pdsi43one "I have PN from pernicious anemia. Anyone else?" + (show)

I do. I have antibodies to my IF Factor. I’m on EOD injections and have been improving but I’m scared it may not completely resolve.

John, Volunteer Mentor | @johnbishop | Nov 26, 2022

In reply to @annelise "I do. I have antibodies to my IF Factor. I’m on EOD injections and have been..." + (show)

Welcome @annelise, I see that you have already connected with @pdsi43one. There are a couple of other discussions for pernicious anemia that you might find helpful:
-- Pernicious anemia: https://connect.mayoclinic.org/discussion/pernicious-anemia-1/
-- I have questions about Pernicious Anemia + IBS + FODMAP: I have questions about Pernicious Anemia + IBS + FODMAP
-- Pernicious Anemia and B12 Ranges: https://connect.mayoclinic.org/discussion/pernicious-anemia-2/

Have you mentioned your concerns with your doctor to see if they have any thoughts?

alfer | @alfer | Nov 26, 2022

I am a member but forgot my password? I tried your directions but will not let me change it????

John, Volunteer Mentor | @johnbishop | Nov 26, 2022

In reply to @alfer "I am a member but forgot my password? I tried your directions but will not let..." + (show)

Hi @alfer, Are you logged in now? If you are, you just need to click on your member name to go to your profile. Once on your profile screen, click the Settings tab below your profile description, then click the Edit link to the right of Change Password. See the attached screen.

Colleen Young, Connect Director | @colleenyoung | Nov 26, 2022

In reply to @alfer "I am a member but forgot my password? I tried your directions but will not let..." + (show)

@alfer, if you are able to post as you did here, you are a member and you are already signed in. If I can help further, please contact me using this form: https://connect.mayoclinic.org/contact-a-community-moderator/