1. < Neuropathy
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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for pamelaz
pamelaz | @pamelaz | Nov 21, 2022
In reply to @luckyd2002 "I had back surgery 2 yrs ago that resulted in neuropathy in both feet. So bad..." + (show)
Profile picture for luckyd2002 @luckyd2002

I had back surgery 2 yrs ago that resulted in neuropathy in both feet.
So bad for while I didn’t drive. I have found couple things that give me some relief, Amitriptyline
Amitriptyline is a tricyclic antidepressant that is widely used to treat chronic neuropathic pain (pain due to nerve damage). It is recommended as a first line treatment in many guidelines. Neuropathic pain can be treated with antidepressant drugs in doses below those at which the drugs act as antidepressants.
Also I use a foot roller with the spiky knobs to activate nerves and roll back and forth while sitting in chair and alternate feet. The roller can be chilled but I prefer room temp.
I am always looking for more ways to get relief so please share.

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Does this go by another name?

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pamelaz | @pamelaz | Nov 21, 2022
In reply to @frattmaa "Nothing helps for your neuropathy?" + (show)
Profile picture for frattmaa @frattmaa

Nothing helps for your neuropathy?

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Not that I have found. It is so painful.

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pamelaz | @pamelaz | Nov 21, 2022
In reply to @peggioh "This is invaluable information, Chris. Thank you!! I will start looking. Peggy" + (show)
Profile picture for peggioh @peggioh

This is invaluable information, Chris. Thank you!! I will start looking. Peggy

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Does this help with bad neuropathy. I don’t even have diabetes’. But the burning, sharp, tingling, electric pain are horrible.

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luckyd2002 | @luckyd2002 | Nov 21, 2022
In reply to @pamelaz "Does this go by another name?" + (show)
Profile picture for pamelaz @pamelaz

Does this go by another name?

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Amitriptyline is older but effective medication for anxiety and depression at higher dose may be generic name also?
Tizanadine is another medication that helps reduce and deal with neuropathy symptoms.
Also for my feet the biweekly pedicure and massage comforting and relaxing and the foot roller.
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luckyd2002 | @luckyd2002 | Nov 21, 2022
In reply to @pamelaz "Does this go by another name?" + (show)
Profile picture for pamelaz @pamelaz

Does this go by another name?

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Unsure

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feetnumb | @feetnumb | Nov 23, 2022

is anyone trying to massage using the device such as https://www.carpalrx.com ?

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1 reply
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johnmacc | @johnmacc | Nov 24, 2022
In reply to @luckyd2002 "Amitriptyline is older but effective medication for anxiety and depression at higher dose may be generic..." + (show)
Profile picture for luckyd2002 @luckyd2002

Amitriptyline is older but effective medication for anxiety and depression at higher dose may be generic name also?
Tizanadine is another medication that helps reduce and deal with neuropathy symptoms.
Also for my feet the biweekly pedicure and massage comforting and relaxing and the foot roller.

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I have a heated vibrating ball I roll my foot on for 10+ min each am then switch feet. I use a tennis ball on the off foot. I get some pleasure and relief from both. Johnmacc

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annelise | @annelise | Nov 26, 2022
In reply to @pdsi43one "I have PN from pernicious anemia. Anyone else?" + (show)
Profile picture for pdsi43one @pdsi43one

I have PN from pernicious anemia. Anyone else?

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I do. I have antibodies to my IF Factor. I’m on EOD injections and have been improving but I’m scared it may not completely resolve.

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1 reply
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Mentor
John, Volunteer Mentor | @johnbishop | Nov 26, 2022
In reply to @annelise "I do. I have antibodies to my IF Factor. I’m on EOD injections and have been..." + (show)
Profile picture for annelise @annelise

I do. I have antibodies to my IF Factor. I’m on EOD injections and have been improving but I’m scared it may not completely resolve.

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Welcome @annelise, I see that you have already connected with @pdsi43one. There are a couple of other discussions for pernicious anemia that you might find helpful:
-- Pernicious anemia: https://connect.mayoclinic.org/discussion/pernicious-anemia-1/
-- I have questions about Pernicious Anemia + IBS + FODMAP: I have questions about Pernicious Anemia + IBS + FODMAP
-- Pernicious Anemia and B12 Ranges: https://connect.mayoclinic.org/discussion/pernicious-anemia-2/

Have you mentioned your concerns with your doctor to see if they have any thoughts?

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alfer | @alfer | Nov 26, 2022

I am a member but forgot my password? I tried your directions but will not let me change it????

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