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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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New to group. I have peripheral neuropathy in both feet and posterior left leg due to L5 S1 disc rupture in 2010. Wear and tear due to heavy athletic background. Had a partial discectomy but the damage was already done to my sciatic nerve on left side. Actually heard/felt it rupture followed by “scalding water” going down the back of my leg. When they were in there they discovered a cyst on the right side nerve root at the same level. They decided to leave it since I had no right-side symptoms at the time (2010). Now the right foot is almost worse than the left, but no leg involvement on that side, just foot.
Also had an ACDF at C3 C4 prior to that, but no permanent damage.
Shoes and socks are my enemy, which is obviously a problem, lol.
Any advice? The ice-pick heel jabs, which result in labor-breathing to get through it, along with numbness, inability to feel heat/cold/water on bottom of feet, are impacting my ability to do shit. It just continues to get worse. At 56, I am quite concerned about mobility down the road. I’ve always been active. I have also had the same bruise on bottom of my left foot for at least a year, right in the middle. WTH?
Neurologist? Podiatrist? I refuse to go on gabapentin.
Welcome @kellygreen, It's understandable to be worried about your future mobility given what you have already been through with the disc rupture and a partial discectomy and prior to that ACDF surgery and now having more pain. Have you thought about seeing a neurosurgeon or orthopedic spine surgeon to see if new symptoms are spine related and if there is anything that might help?