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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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It's so true, @thetillmanthetillman: We all have different symptoms, yet something of value to share.
My PN is all about balance (poor balance, that is). I've no pain. Reading others' posts taught me a much-needed lesson: "Consider yourself fortunate, Ray, that your PN doesn't give you pain. Others here are in excruciating pain."
It took me a while to realize how fortunate I am. I may not have pain today, but tomorrow? That's anyone's guess. These days, I always try to remind myself: There, but for the grace of a glacially slow progression of my PN, go I.
My best to you, @thetillmanthetillman!
Ray (@ray666)
About 15 years ago, I got off a plane in Singapore and experienced extreme foot pain..hopped around
Asia for a couple of months ,,meeting tsunami survivors, and old volunteer friends...after returning home
a local MD said I had gout....months later a new family doctor recommended me to a neurologist,,he told me
I had neuropathy ,,,,and I asked what that was..his answer was short...nerve pain and it will get worse.. I
Didn`t like that answer, so as many folks do, I went on a voyage...tens, blue lazer, acupuncture ,,acupressure,
and any other option available...plus a basket full of drugs. In the early years the pain, cold, hot, needles and
twisting of the feet were almost unbearable ,After a few years the following was recommended to me ,,,which allowed me to function...almost
normally...rating pain from 0 to ten,,,I was an 8...and this medicine gave me about a 2 rating...
Pregabalin 2hundred mg at noon and 8pm
6mg hydromorph Contin ( slow release) at 7am and 7pm
I know the I have probably became addicted to the hydromorph after all these years, but it has allowed
me to continue with life in a relatively normal fashion.....