Living with Neuropathy - Welcome to the group

I'm NOT a doctor. So, I can do nothing but relate my experience. But, I've seen recent ads for Sanexas treatment on local television. It is advertised as being for Peripheral Neuropathy. The conduction points are on the foot.
I had them put the electrodes on my lower back, instead. This was approved by the Nurse Practitioner at the Sanexas location. Dry Needling was also done on the same days.
It sounds like your problem is different from mine.
The Neurologist told me that it sounded like I might have a combination of peripheral neuropathy and that nerve problems from L3-4 "could be" part of the problem. The closest thing to a diagnosis is idiopathic peripheral neuropathy. In other words, they don't know what is wrong, just like your case and the cases of many of us.
It is important to note that Sanexas and needling did not help my foot drop or limb weakness. It did help the needle-like itching in my feet.
Following an approach where the patient should participate (within reason) in their treatment, I think I would ask more questions. It seems like you are on the right path. You didn't say whether your doctor was a Neurologist. Were your tests blood work that can rule out a lot of neuropathy causes? I paid for several panels, but they were inconclusive. Many docs will not even test, simply because there is usually no cure. They treat the signs and symptoms.
Have you tried massaging trouble areas to see if that helps? That may tell you a lot.
I feel your anxiety, and I'm sorry I don't have a better answer for you.
Best Wishes and Health!

Thank you for your response. I have a neurosurgeon who performed my C5-6 fusion and discetemy. He feels that all the symptoms are not related to the spine injuries or surgery. I also have a neurologist and rheumatologist who are treating me for the symptoms. The neurologist feels it is autoimmune related and the rheumatologist feels that it is neurologically related. I'm like a ping pong ball right now. I have had three series of extensive blood work done and also two EMGs and four MRIs. The next step is the skin biopsy. Can you tell me more about the B12 treatments? I take B12 supplements and eat a diet rich in anti inflammatory foods to help my symptoms as much as possible. I also go to physical therapy and do tai chi at home. I will try any alternative treatments that I can find available. I will be going to the cleveland clinic next month. The mayo clinic is much farther away, but I will be inquiring about going there as well, once I am able. I am 45 years old and have two young children so this is quite a challenge for my family.
Thank you for any advice you have to offer.

Kat

it helps to move around alot and do daily exercises under the guidance of a pt specializing in neuropaty and to take a half a pill of Effexor twice a day.

I’m 67 yrs old and was a fit adult. I came down with muscle soreness in shoulders, hips, back etc, Jan 5th out of the blue. I’m in the process of getting evaluated for the cause but all signs seem to point to PMR? I’m not a doctor , so I don’t want to make that evaluation. My Dr. has put me on Prednisone and that’s the only relief I get. My question is , can you function with this condition and Meds? The pain is unreal.

Hi @claude67,
There is a group here on Connect dedicated to PMR which may be helpful for you: https://connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr/.

It also needs to be known and understood that some RX meds can cause Peripheral Neuropathy. These include Ciprofloxacin, , Levaquin and other anti-biotics in a class of drugs called Fluoroquinolones. I mean they are poison and Doctors prescribe them regularly giving folks Neuropathy. Mine was toes first and eventually involved all of both feet. Also some in hands. Burning, stinging, pin pricking and feel like you are on Fire.

I finished taxcel 3 months ago. I had 12 sessions of tacxel weekly, with herceptin/perjeta every 3 weeks.. I did have ice on my feet and fingers. It didn’t seem to help. I was told at one of my consult appointments that the icing should begin half hour before and half hour after treatment. Scheduling at treatment didn’t allow for that and was then told they never heard of that and never do that. But I don’t think I could have tolerated more coldness. I am getting only herceptin now every 3 weeks. Neuropathy is in my toes, fingertips and tongue. Fingernails are extremely dry and a couple are coming apart from the skin underneath. I’ve been rubbing coconut oil, which seems to help some.

Welcome @becky70, It sounds like you might experiencing neuropathy symptoms from your treatment. I'm wondering if you might find the following discussions helpful:
--- Chemotherapy-induced neuropathy: What helps get rid of it?:
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/
--- Baclofen for Chemo-induced Peripheral Neuropathy?:
https://connect.mayoclinic.org/discussion/baclofen-users/
--- Chemo-induced Peripheral Neuropathy and Breast Cancer:
https://connect.mayoclinic.org/discussion/neuropathy-11/.
Have you discussed the symptoms with care team to see if they might have some other suggestions?

I can relate to the burning feet!. I can't use Bio- Freeze but I use Aspercreme with Lidocane. Its oder free and it works for 12 hours, also non greasy. GOOD LUCK AND GOD BLESS

ice only makes the feet more numb-get with a pt who specializes in neuropathy to learn exercises that can help you and take one half a pill of Effexor 2x a day as your med is not working-Michael Storman