Living with Neuropathy - Welcome to the group

Hi @marksmom, Welcome to Connect. I'm sorry to hear you haven't gotten any relief yet. It's good to hear you have an appointment with a neurologist at Mass General Hospital. Hopefully they can help you with a treatment for the S1 Radiculopathy. From what I've read surgery can help but that might be a question when you have your upcoming appointment.

"Corticosteroid injections reduce pain by suppressing inflammation around the irritated nerve. This is an excellent treatment for L5 or S1 radiculopathy when other conservative, nonsurgical treatments have not worked. There are generally two reasons for surgery. The first is significant weakness, such as a foot drop."
--- Sciatica and radiculopathy: Peculiar names for shooting back, leg pain: https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/sciatica-and-radiculopathy-peculiar-names

Do you have any pain with the right leg and lower back?

Left leg and back. Excruciating pain

No. I only have pain in the left leg and left back right and left on neuropathy

Hi @rocketdad, Welcome to Connect. Sorry to hear that you have been dealing with neuropathy and other related issues for 40 years with not much relief. There is a lot of information out there but you really have to do your research and find reliable sources. Here are a couple in case you haven't seen them.

-- Neuropathy Commons: https://neuropathycommons.org/index.php/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/treatments/

Are you able to share a little more about your diagnosis and the symptoms that are most bothersome?

Hi everyone.
Introduction: my name is Michele. I have stage 4b colon cancer. I am currently doing chemo treatments. I am at my 11th round.
I struggle with neuropathy. It is the worst. I know it is due to the chemo treatment that I receive. My care team recently switched my medication to Duloxetine. It seems to help. I still get random pins and needles in my hands and feet but not as much as before. In a few weeks I am looking to add Gabaplatin to my medicine list.
My husband picked up some nerve cream from walmart that seems to also work. I think with the correct mix of regiments, maybe we can find a solution to this.

Hi @wifemom3, Have you seen this webinar?

Hi Im Beth from Montana. I have neuropathy in my lower legs, now increasing in lower left leg—is this related to recent concussions? Left hip pain? Possible spinal involvement? Thanks!

Glad to see this group. I have idiopathic sensorimotor axonal polyneuropathy, which means, in my case, that both my legs are weak and sometimes my feet hurt, but there is no known cause of the neuropathy and no known cure.
Sometimes I experience the most foot pain lying in bed. I have been offered gabapentin, but in my experience that drug was not helpful.
I also understand that alcohol may exacerbate neuropathy, so I stoped all alcohol intake; however, I haven't seen any improvement yet.
I had a laminectomy at L4-L5. That had the possibility of easing the neuropathy, but it didn't.
What's next? Don't know.
Kevin