Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@johnmacc

I take Gabapentin daily. Three 300 mg. at 8 am 12, 4 and 8 pm. It's been helping me for several years about 50-60% pain reduction. I am non diabetic. John

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Welcome @johnmacc, Thanks for sharing how the gabpentin is some pain reduction for you. Do you mind sharing a little more about your diagnosis and any other treatments that you have found helpful?

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@cue

I have been trying to find comfortable shoes since I was diagnosed with small fiber neuropathy. All of the shoes I have researched are in medium or wide width. Does anyone have any suggestions for a shoe that comes in a narrow width?

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I’m hoping someone has answer for you (us). I LOVE everything Skechers has helped me with, but I wish they came in narrow. Some folks here need wider toes, less compression etc, but I think I’d have better grip if I had narrow shoes. However, I compensate with having thicker socks to help fill the shoe better. I don’t know the Walmart 6 pack of socks I found, but they have extra padding around the heels, balls of feet, and toes, and help fill my comfortable slip-on Skechers just fine!

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I am currently being worked up for peripheral neuropathy. I have an EMG Wednesday and see a neurologist in3 weeks. I am perusing the comments and
experiences of others as I move through this.

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@dbeshears1

I’m hoping someone has answer for you (us). I LOVE everything Skechers has helped me with, but I wish they came in narrow. Some folks here need wider toes, less compression etc, but I think I’d have better grip if I had narrow shoes. However, I compensate with having thicker socks to help fill the shoe better. I don’t know the Walmart 6 pack of socks I found, but they have extra padding around the heels, balls of feet, and toes, and help fill my comfortable slip-on Skechers just fine!

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@dbeshears1 and @cue - Have you seen this discussion? You might want read through it and see if others have a suggestion for shoes that might work for you.

Does anyone find that a type of shoe helps your foot neuropathy?: https://connect.mayoclinic.org/discussion/does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy/

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@lyndajenn

I am currently being worked up for peripheral neuropathy. I have an EMG Wednesday and see a neurologist in3 weeks. I am perusing the comments and
experiences of others as I move through this.

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Welcome @lyndajenn, I'm glad you found Connect in your search. A lot of us have shared our story and what helps in this discussion that you might find helpful - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

There are a couple of sites that I recommend if you want to learn more about your conditions and different treatments available.
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

I'm glad to hear you have an upcoming appointment for an EMG and a followup with a neurologist. Do you mind sharing what symptoms you are having?

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HELP! Looking for advice about mixing marijuana in a tincture. What should I mix it with and in what proportions?

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@steeldove

HELP! Looking for advice about mixing marijuana in a tincture. What should I mix it with and in what proportions?

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Hi @steeldove, I don't have any experience with tinctures but I think Chris @artscaping may have some suggestions to share with you. I did find this information but I'm not sure how reliable it is...

Cannabis tinctures 101: How to make, consume, and dose them: https://www.leafly.com/news/cannabis-101/cannabis-tinctures-101-what-are-they-how-to-make-them-and-how-to

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@johnbishop

Hi @steeldove, I don't have any experience with tinctures but I think Chris @artscaping may have some suggestions to share with you. I did find this information but I'm not sure how reliable it is...

Cannabis tinctures 101: How to make, consume, and dose them: https://www.leafly.com/news/cannabis-101/cannabis-tinctures-101-what-are-they-how-to-make-them-and-how-to

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Thank you, John. It was Chris @artscaping I was trying to remember.

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@johnbishop

Welcome @lyndajenn, I'm glad you found Connect in your search. A lot of us have shared our story and what helps in this discussion that you might find helpful - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

There are a couple of sites that I recommend if you want to learn more about your conditions and different treatments available.
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

I'm glad to hear you have an upcoming appointment for an EMG and a followup with a neurologist. Do you mind sharing what symptoms you are having?

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Thank you for your note. I an having numbness in index fingers and thumbs, big toes...and a tingling, goosebump/crawling sensation in both lower legs. No pain or cramping. I will continue to dig into this site. EMG is in morning.

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@amaze02

Diabetic nuropithy causes and treatment.

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There are many causes of neuropathy. Diabetes is the number one cause in the United States. Other common causes include trauma, chemotherapy, alcoholism, and autoimmune diseases.

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