Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

John, Volunteer Mentor | @johnbishop | Aug 6, 2021

In reply to @gailmarie123 "Hi Colleen, thank you for allowing me to join your group, How do I post a..." + (show)

Hi @gailmarie123, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Posting questions is easy. To reply to a post you are reading, simply click on the REPLY button below the post and type your response or question. If you are not replying to a post but want to post a new question, scroll to the bottom of the discussion and type your question and click the POST COMMENT button.

More tips and how to use Connect can be found in the Get Started on Connect guide here: https://connect.mayoclinic.org/get-started-on-connect/. You can also open the guide from any Connect page by scrolling to the bottom and clicking the link available in the left most footer column.

Do you have a question on neuropathy?

polywog | @polywog | Aug 6, 2021

In reply to @iampatient ". The name is Hemp-AID and it is produced in Calgary Alberta . The name of..." + (show)

I found a couple of products called hemp-aid But not from Canada. Would you mind doing an online search for your specific product and giving us the URL? Thank you!

John, Volunteer Mentor | @johnbishop | Aug 6, 2021

In reply to @polywog "I found a couple of products called hemp-aid But not from Canada. Would you mind doing..." + (show)

@polywog, I can share the link @iampatient mentioned - https://sativagroup.ca/hemp-aid-massage-pain-spray/

iampatient | @iampatient | Aug 6, 2021

In reply to @polywog "I found a couple of products called hemp-aid But not from Canada. Would you mind doing..." + (show)

I am sorry but I tried to give you the website name but Mayo Clinic has refused the comment from new members for scam purposes.
I can send a photo and tell you it is available at sativagroup.com
I can tell you more if I message you personally but this is the best I can do through Mayo Clinic protection to their members.

John, Volunteer Mentor | @johnbishop | Aug 6, 2021

In reply to @iampatient "I am sorry but I tried to give you the website name but Mayo Clinic has..." + (show)

Hi @polywog, I shared the link for you in the post above yours. You should be able to post links in a few days. New members are not allowed to post links for a few days to prevent spammers from joining and posting advertisements which is not allowed. Here's the post where I shared your link for you - https://connect.mayoclinic.org/comment/623929/

kenc | @kenc | Aug 7, 2021

JAMA has published a recent article/study on the use of opioids in the treatment of chronic pain. It runs contrary to what is the current practice of many doctors for using opioids to treat chronic pain and criticizing the CDC guidance for creating the situation of doctors inappropriately weaning people of off opioids, which actually leads to greater illegal opioid consumption and suicide.

Chris, Volunteer Mentor | @auntieoakley | Aug 7, 2021

In reply to @kenc "JAMA has published a recent article/study on the use of opioids in the treatment of chronic..." + (show)

I mostly just lurk on this thread, but I am very curious about this comment because of my husband with chronic bone pain. Can you further clarify this, or post a link?

John, Volunteer Mentor | @johnbishop | Aug 7, 2021

In reply to @auntieoakley "I mostly just lurk on this thread, but I am very curious about this comment because..." + (show)

@kenc, The only recent JAMA article I could find on the use of opioids for chronic pain is from Dec 2018. Is this the one?

Opioids for Chronic Noncancer Pain - A Systematic Review and Meta-analysis: https://jamanetwork.com/journals/jama/fullarticle/2718795

Chris, Volunteer Mentor | @auntieoakley | Aug 7, 2021

In reply to @johnbishop "@kenc, The only recent JAMA article I could find on the use of opioids for chronic..." + (show)

Geez, John you are quick! Lol
I had read this one before, thank you for looking because I thought maybe I missed something. My husband has cancer pain, but if there was new info about opioids and chronic care, I was very interested.

John, Volunteer Mentor | @johnbishop | Aug 7, 2021

In reply to @auntieoakley "Geez, John you are quick! Lol I had read this one before, thank you for looking..." + (show)

This is a JAMA article from Jan 7, 2021, I wonder if this might be the one....found using Google Scholar - https://scholar.google.com

Frequency of and Factors Associated With Nonmedical Opioid Use Behavior Among Patients With Cancer Receiving Opioids for Cancer Pain: https://jamanetwork.com/journals/jamaoncology/article-abstract/2774522