Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Connect

The protocol of supplements I take includes B vitamins and others recommended on the Foundation for Peripheral Neuropathy website under the Natural Products which has a link to a PDF document listing vitamins known to help neuropathy - https://www.foundationforpn.org/living-well/integrative-therapies/.
I posted my story and the product I use (Protocol 525) in the Member Neuropathy Journey Stories - What's Yours discussion here - https://connect.mayoclinic.org/comment/310341/. Whatever you decide, you should always discuss any supplements you take with your doctor.
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1 ReactionThank you so much John, I will certainly check it out!
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1 ReactionMeds for neuropathy. Any new ones
Good afternoon @fruitcake. Welcome to Connect. As mentors, we focus on improving the quality of life for every member. Without a medical background, we cannot diagnose or prescribe. What we can do is share our personal experiences and introduce you to others who may have something to share with you.
What neuropathy meds are you using now? And one more question....what type of neuropathy are you experiencing?
May you be safe and protected from inner and outer harm?
Chris
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2 ReactionsNo one has discussed footwear which is an integral part of daily life and our painful disability. I wear new balance or ASICS sneakers most of the time. I just purchased an ugly Ecco sandal and it is wonderful. My foot is supported in arch, balls. I never thought I would find an appropriate sandal for the intense heat.
There are two discussions you might find helpful.
-- Does anyone find that a type of shoe helps your foot neuropathy?: https://connect.mayoclinic.org/discussion/does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy/
-- If the shoe fits...right?: https://connect.mayoclinic.org/discussion/if-the-shoe-fits-right/
For me, sandals don't work because I need side support of the feet as well as the arch.
Thanks, @johnbishop. I spent an hour or so at the shoe store yesterday to get ready for my TKR surgery next month. I have always been a New Balance, Munto and Mephisto shopper because I have a high instep and a fat foot. My mother said that was because I went barefoot all the time. And I told her that I was just doing what the cows did.
I also want shoes without laces. Why? Because if the lace comes undone, I don't want to trip over it. Every orthopedic surgeon will tell you, "Don't fall, I can't fix you". I ended up changing to a new company called HOKA.....from France. I haven't had time to research them but the shoes fit like they were made just for me. I will create a post when I have more information.
May you be content and at peace.
Chris
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2 ReactionsAll of my footwear are Skechers. I have slippers, sliders, sandals, boots, shoes, and trainers. All offer so much comfort.
Ooooh please tell us more about Hoka, everything you just said about your feet, habits, and preferences, could have come from me. I am always watching for the next great shoe of comfort.
Hi there @auntieoakley, I am also very interested in the Hokaoneone shoes. Here is the link
http://www.hokaoneone.com/womens-view-all
I like their mission and how they have made it work for everyone. I did have them replace the laces with the kind that you don't have to tie. If it is in the '80s, not 90's tomorrow I will give them a try.
Happy 4th.
Chris
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