Living with Neuropathy - Welcome to the group

@pondoak @terryzrust @bethwiseman @windsorchris @efgh1020 @artscaping and others, The Foundation for Peripheral Neuropathy is having a Chair QiGong for PN Webinar if anyone is interested in giving it a try.

QiGong combines gentle flowing movement with breathing and meditation techniques that provide low-impact exercise, improved balance, and overall health benefits. Ms. Cynthia Maltenfort, who is a yoga, tai chi and QiGong instructor, will lead us in this ancient form of Chinese exercise. Learn how QiGong, modified for beginners, can help you.

Wednesday, June 16
2:30 - 3:30 p.m. Eastern Time
1:30 - 2:30 p.m. Central Time
12:30 - 1:30 p.m. Mountain Time
11:30 a.m. - 12:30 p.m. Pacific Time

Register for the Webinar: https://register.gotowebinar.com/register/678958740669516812

So, will this help my PN?

Gabapentin is definitely not helping me withPN

It’s something to try if nothing else is giving you relief. It sounds like it has helped some people.

Hello:
Please, would you tell me in Miami where are local pharmacies for buy Gabapentin?
Best regards,
Cynthia

Hello @silverapple I believe you need a prescription for Gabapentin. @johnbishop can you confirm?

Hello @silverapple, I think @amandajro is correct. You can't buy Gabapentin without a prescription although I'm not sure about some unscrupulous online pharmacies. I think it's a controlled substance in quite a few states and controlled state by state.

State-Imposed Restrictions on Gabapentin: https://www.medval.com/2020/01/08/state-imposed-restrictions-on-gabapentin/

My husband has been dealing with severe muscle loss and fasticulations for about a year and it has gottten increasingly worse.They thought he had multi-focal motor neuropathy but he did not have the antibodies, or any conduction block on his Emg's. So they seem stumped and now think its a type of als though he doesnt have foot drop, or exaggerated reflex. and other indicators. He is extremely upset and I can'thelp but feel that because they don't have a definitive diagnosis they are pointing to that. Anyone have similar experience or can suggest any other tests or avenues to follow. I really appreciate your help.

Hello @theresadono, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I just read the patient's story that sounds like it might be similar to what your husband is experiencing.

Excerpt from article below – "My diagnosis changed from benign fasciculation syndrome (BFS) to cramp … I do not have amyotrophic lateral sclerosis (ALS) or multiple sclerosis (MS) and …" – Living Each Day to the Fullest – GBS/CIDP Foundation: https://www.gbs-cidp.org/patient-stories/living-each-day-to-the-fullest/

Have you thought about seeking help or a second opinion from a major teaching hospital or health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

Treatment of peripheral neuropathy in both legs; medications utilized by prescription; non-prescription medications, trouble sleeping through