Living with Neuropathy - Welcome to the group

@mojosteve1961, I'm happy you found Connect and hoping it helps you like it helped me become a better advocate for my health by learning as much as I can about my health conditions. Here's another discussion and information you may find helpful related to diabetic neuropathy.

- Diabetes & Taking Care of Your Feet - It's Important!: https://connect.mayoclinic.org/discussion/diabetic-neuropathy-its-important-to-take-care-of-your-feet/
- Foot care with diabetes: https://connect.mayoclinic.org/page/take-charge-healthy-aging/newsfeed-post/foot-care-with-diabetes/

I see you are from one of my all time favorite popcorn ordering locations - Valparaiso, Indiana. In my younger days, I had a friend who was as crazy about popcorn as I was. We would order 20 lb containers of popcorn from Orville Redenbacher, the King of Popcorn - https://www.roadsideamerica.com/story/35463. Have you found any tips that help your feet feel better?

@helenholland3
@deanbiglets
@larrymc
@jesfactsmon
Like Hank mentioned seizure meds can cause it too. That's what happened to me. i’ve had neuropathy about 40 years. I went through all the horrendous pains of every sort and could barely walk. But my awful pains eventually went away. However the numbness never did go away it went from the bottom of my feet up to my waist. The lower it is the worse it is. I never found anything that could relieve my numbness. My doctor put me on fentanyl for other pain which had a beneficial affect on the neuropathy pains but not the numbness. I went up to 3600 mg, the maximum dose of Neurontin. It had no effect on my seizures or neuropathy. I knew of a patient who was taking 7000 mg of gabapentin but I don’t remember if he had any beneficial results. I wouldn’t think he would take that much medication if he didn’t help him. Like John I too have balance issues primarily from seizure medications and I do fall quite a bit but that’s primarily due to the fact that I have difficulty with numbness so I end up tripping myself.
Best wishes,
Jake

the "nero" in my hands and feet, particularly my hands. has become more evere over time. The queestion i have is;"Does this progression eventually lead to paralysis of the hands?"

@cnn I don't believe any of us has the answer to your question. I do think that we each have choices as to how we deal with the symptoms of neuropathy and we just take it day by day doing the best we can. For me, mild exercise makes me feel better even though it might not be doing anything for the neuropathy. Here's some information on how it can help.

- The Role of Rehabilitation in the Treatment of Peripheral Neuropathies: https://neuropathycommons.org/neuropathy/role-rehabilitation-treatment-peripheral-neuropathies
- Exercise + Physical Therapy For Neuropathy: https://www.foundationforpn.org/living-well/lifestyle/exercise-and-physical-therapy/

You mentioned in an earlier post that you had surgery for carpal tunnel syndrome. Have you had a chance to discuss your question with your doctor to see if they might have some suggestions?

Thank you for your reply, The only recommendation was to try vit. b12. Have" Stress Balls" that i use from time to time. Also heat as i have mentioned before. As we are often told as we grow older;"You'll have to learn to live with it." i do that by being thankful for all the decades everything worked so well and being grateful for what is left.

cnn, is the B12 your using Methylcobalamin?. If not, try a fast melt sublingual form of Methylcobalamin. Methlcobalamin like Hydrocobalamin is a nerve healer. As we age intrinsic factor in our stomach declines causing poor B12 absorption Also research Benfotiamine a fat soluble form of thiamine (vitamin B1) for each of the symptoms you mentioned. Thiamine plays a major role in many areas of our bodies including eyes, GI system, nerves, heart and brain. Water soluble thiamine like vitamin D requires magnesium to become bioactive and may not pass through the blood/brain barrier as well as fat soluble forms. Look into the foods and drugs you are using for negative impacts on your thiamine. Take time to research the other B vitamins as they work better together. Always consult with your health care professional before using any supplement.

Thank you Hank I had not heard of myofascial therapy. I will look into this.

Onamission, thank you fir your information. Yes I only use Methylcobalamin, not the synthetic lab made cobalamin, because it is more easily absorbed by the body. I know I should be taking more B vitamins and I plan to look into that. So thank you again.

@colleenyoung. @johnbishop. Hi Colleen. I stopped receiving my email notifications after John Bishop’s reply on Wednesday night. Could it be that my email bounced back to your server as undeliverable? I see sporadically over the months some of the emails go to my junk folder by my gmail account. Please help!

@bustrbrwn22, thanks for reporting this. @colleenyoung can check to see if you email is being bounced.