Living with Fibromyalgia: Introduce yourself & meet others

Welcome to the Fibromyalgia Support Group on Mayo Clinic Connect.

This is a welcoming forum where you can meet people who know first-hand about living with fibromyalgia. Together we can learn from each other and share stories about challenges and coping strategies, setbacks and the things that help.

Find your comfy spot, settle in and introduce yourself. What is your experience living with fibromyalgia (i.e., treatment, symptom management, coping strategies, etc.)? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Iam73 yrs old. I am 5'8'' , 135 pounds. i go to trainer 2 times per week and do cardio at home. had car accident, fely pain all over for couple days. then had tramatic stress event that resulted in full fibro now more than 15 yrs. ago. I have more than a dozen tender points on my body, which don't bother me. when I have a flair up the pain type varies, burning, sharp, achy. I also have places of pain that linger, like left rib area, etc. I feel fatigue that is'nt helped with my meds, I get urinary frequency from feeling of urgency, my sleep is interrupted, I get a feeling of depression, Have bad brain fog with bad flair up,, have modified my activities due to less stamina, stopped going to meetings at night, don't like to be out passed 9:30 which has caused a major problem of worrying if I will have energy for daily activities, I try not to talk about my pain and get upset if husband asks? Who wants to have a partner like that! I have found cardio will help me feel better, unless bad flair up. I have headaches and sinus problems. intermitent IBS . Sounds like classic case. I havr tried, savella, gabapentin, lyrica, cymbalta which did not change symptom pattern. I was given adderal which helps me focus better and will give me energy to live, unless bad flair, then I try cardio when that doesnt offer relief I nap. IN the beginning I was in bed alot until I felt like this is what a dying person does so I started looking for treatment. Now I know at this point there is no tratment. They don't know what it is or the causes I do a lot of research. I know if I am worried, or over work it flairs. I take 2-4 tylenol every day, evening brings worse pain. I don't want to get addicted to pain meds so I use them sparingly and never take a full dose. I have tried ice baths, accupuncture, meditation, etc. etc. , just bought accu mat so I don't know, but it doesn't relivev tender points.
Went on blog once but everyone was so down I stopped... Good luck to everyone and I just reccomend being in tune...

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Profile picture for dinycat @dinycat

I am new to both this site and Fibro. I am 76 years old, and female. I've been in much pain and have tried Naproxen, Meloxicam and Diclofenac to no avail. Lately, I've been taking LYRICA, which has been hailed as a new treatment. It doesn't work for me. I've been on CYMBALTA for many years for depression, and it obviously doesn't work, either. I have been under tremendous stress, which I believe caused the disease and has exacerbated it. The big problem is that my husband is on oxygen and can do nothing, so I've sort of taken over chores and things he used to be able to do. And it's killing me. Some days I can hardly walk, am exhausted and very irritable. I've got to find something that alleviates the pain!
I am a Mayo patient for years but have yet to see a specialist as I spend winters in Florida and summers in Illinois (which is closer to the clinic). I intend to get appointment this summer, but I have to function till then. I am excited to perhaps learn some coping strategies from you people!

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@dinycat
Pace yourself. If you like a clean house, just little bit every day.

Move. Anything from sitting in a chair and tighten loosen each muscle group for a few seconds-to-a short walk if you are able. Every day.

Ice what hurts worst after movement. 20 minutes.

If you rest on your side, place a bed pillow between your knees.

I sleep covered with a heated throw on a low setting.

I practice grounding, which is as simple as taking shoes/socks off and walking on the ground. I live close to a beach, so take a walk on the sand.

Is your husband entitled to nursing or home health care?

Get as much sugar and processed foods out of your diet. If needed, have a “bad” day in which you treat yourself to processed foods and sugar.

Hope this helps.

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I was "officially" diagnosed in July of 2024 after many years of off the wall symptoms. It was questioned again by another neurologist late last year and then rediagnosed again. I often wonder if I really have it. I'm currently taking Lyrica and it is helping with many symptoms. I'm also looking at cervical spine surgery and possibly lumbar laminectomy after that so that probably compounds some of my symptoms.

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I’ve been struggling with fibromyalgia since my 50’s, am now 66. Fibromyalgia is definitely better (not gone), and I even stop taking Cymbalta. Flare ups can be bad but only last a few days and I get a break until next flare up usually after I see my chiropractor. Using LDN, heating pad, Advil (not often), chiropractor, magnesium helps a lot with sleep. Major depression doesn’t change. I should be happier since fibromyalgia is better. Does everyone with fibromyalgia experience depression?

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Profile picture for mostlysunny @mostlysunny

Iam73 yrs old. I am 5'8'' , 135 pounds. i go to trainer 2 times per week and do cardio at home. had car accident, fely pain all over for couple days. then had tramatic stress event that resulted in full fibro now more than 15 yrs. ago. I have more than a dozen tender points on my body, which don't bother me. when I have a flair up the pain type varies, burning, sharp, achy. I also have places of pain that linger, like left rib area, etc. I feel fatigue that is'nt helped with my meds, I get urinary frequency from feeling of urgency, my sleep is interrupted, I get a feeling of depression, Have bad brain fog with bad flair up,, have modified my activities due to less stamina, stopped going to meetings at night, don't like to be out passed 9:30 which has caused a major problem of worrying if I will have energy for daily activities, I try not to talk about my pain and get upset if husband asks? Who wants to have a partner like that! I have found cardio will help me feel better, unless bad flair up. I have headaches and sinus problems. intermitent IBS . Sounds like classic case. I havr tried, savella, gabapentin, lyrica, cymbalta which did not change symptom pattern. I was given adderal which helps me focus better and will give me energy to live, unless bad flair, then I try cardio when that doesnt offer relief I nap. IN the beginning I was in bed alot until I felt like this is what a dying person does so I started looking for treatment. Now I know at this point there is no tratment. They don't know what it is or the causes I do a lot of research. I know if I am worried, or over work it flairs. I take 2-4 tylenol every day, evening brings worse pain. I don't want to get addicted to pain meds so I use them sparingly and never take a full dose. I have tried ice baths, accupuncture, meditation, etc. etc. , just bought accu mat so I don't know, but it doesn't relivev tender points.
Went on blog once but everyone was so down I stopped... Good luck to everyone and I just reccomend being in tune...

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@mostlysunny sounds very familiar! I enjoyed reading this-you are so upbeat! That, in itself, makes a difference. Thank for your thoughts!

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Profile picture for mostlysunny @mostlysunny

Iam73 yrs old. I am 5'8'' , 135 pounds. i go to trainer 2 times per week and do cardio at home. had car accident, fely pain all over for couple days. then had tramatic stress event that resulted in full fibro now more than 15 yrs. ago. I have more than a dozen tender points on my body, which don't bother me. when I have a flair up the pain type varies, burning, sharp, achy. I also have places of pain that linger, like left rib area, etc. I feel fatigue that is'nt helped with my meds, I get urinary frequency from feeling of urgency, my sleep is interrupted, I get a feeling of depression, Have bad brain fog with bad flair up,, have modified my activities due to less stamina, stopped going to meetings at night, don't like to be out passed 9:30 which has caused a major problem of worrying if I will have energy for daily activities, I try not to talk about my pain and get upset if husband asks? Who wants to have a partner like that! I have found cardio will help me feel better, unless bad flair up. I have headaches and sinus problems. intermitent IBS . Sounds like classic case. I havr tried, savella, gabapentin, lyrica, cymbalta which did not change symptom pattern. I was given adderal which helps me focus better and will give me energy to live, unless bad flair, then I try cardio when that doesnt offer relief I nap. IN the beginning I was in bed alot until I felt like this is what a dying person does so I started looking for treatment. Now I know at this point there is no tratment. They don't know what it is or the causes I do a lot of research. I know if I am worried, or over work it flairs. I take 2-4 tylenol every day, evening brings worse pain. I don't want to get addicted to pain meds so I use them sparingly and never take a full dose. I have tried ice baths, accupuncture, meditation, etc. etc. , just bought accu mat so I don't know, but it doesn't relivev tender points.
Went on blog once but everyone was so down I stopped... Good luck to everyone and I just reccomend being in tune...

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@mostlysunny you are doing so many things right. I have had FM for over 40 years at first not too bad except it came with migraines. My only medication now is 4 Tylenol 3s, an 100 mg of a low dose antibiotic. I have reactions to all of the FM meds which end up with blurred and decreasing vision. recently my doctor decided I should try gabapentin and again ended up at an eye specialist. cold is the worst thing for me, I must have heat. Wishing you all the best in figuring out what to do for yourself. None of us is the same, has the same symptoms- mine change with the weather.

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Hi. I am nu to this site! Im sooo releived 2 hav a group wif sum 1 like mee. I waz en a car acksident a wile bak so pleez 4giv me spelin i reellee kant help it. So than u 4 Ur understandin:} If u du not understan wat im tyoin pleez jus ask I will du mi best 2 cleer it up. I hav a brain enguree, fibro,, Ijus shake sum timez, pain all tha time, drpreeshun I get reelleecold whin a drink sumthin cold (Brrrr)< sumtimez it iz hard for mee 2 undrstand, i kant sit tooo long, mi bonez hert, mi skin b so sensitive I kant evan stan 2 b touch bi anee thain, anee bodee or mi self & sum othor thingz. i do hav aself kleenin vacuum tii help mee. Gosh mi flarez last 2 to 3 weekz at a time!!! Thay ware mee ot! im jus kummin off 1 now. but im a fighter. In not gonna let Fibro WIN!! I think i need 2 swich dr1

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Profile picture for kimmeefibrofighter @kimmee

Hi. I am nu to this site! Im sooo releived 2 hav a group wif sum 1 like mee. I waz en a car acksident a wile bak so pleez 4giv me spelin i reellee kant help it. So than u 4 Ur understandin:} If u du not understan wat im tyoin pleez jus ask I will du mi best 2 cleer it up. I hav a brain enguree, fibro,, Ijus shake sum timez, pain all tha time, drpreeshun I get reelleecold whin a drink sumthin cold (Brrrr)< sumtimez it iz hard for mee 2 undrstand, i kant sit tooo long, mi bonez hert, mi skin b so sensitive I kant evan stan 2 b touch bi anee thain, anee bodee or mi self & sum othor thingz. i do hav aself kleenin vacuum tii help mee. Gosh mi flarez last 2 to 3 weekz at a time!!! Thay ware mee ot! im jus kummin off 1 now. but im a fighter. In not gonna let Fibro WIN!! I think i need 2 swich dr1

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@kimmee Welcome to MayoClinnicConnect! I’m glad that you found the site. It took me a few minutes to understand what you were writing, but once I got it, it was a breeze. I understood everything! Do doctors know about your flares and how long they last and the pain? Have they prescribed anything? I always ask too many questions so now I’ll let the members share their experiences.

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@kimmee Welcome to MayoClinnicConnect! I’m glad that you found the site. It took me a few minutes to understand what you were writing, but once I got it, it was a breeze. I understood everything! Do doctors know about your flares and how long they last and the pain? Have they prescribed anything? I always ask too many questions so now I’ll let the members share their experiences.

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@becsbuddy Hi. Thank U. Im glad that U got it. That made mee smile! A lot ov timez I tri & askd sum1 how 2 spel sum wordz but alot ov timez I dont hav that help. Mi Pain flarez last frum 2&1/2-3 weeks at a time! Tha pain Dr. that I hav has tried sooo manee medicashunz a cuple I am allergill too. But most did not werk at alll. It waz like taken water! Tha wonz that did giv mee anee releef weer off quick like a 1 our to 2 ourz lator! Last yeer waz sooo incrdedabillee ruff! So mi frend wint wif mee, She suggest that i get a 2nd opinion, I think I will. Im tired ov suffern! OO no U du not ask 2 manee questionz for mee I enjoy it, Ast away. Im glad I found this bcuz wend wee astkd mi drz. thay sed thay did not no anee!!!

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@kimmee Welcome to MayoClinnicConnect! I’m glad that you found the site. It took me a few minutes to understand what you were writing, but once I got it, it was a breeze. I understood everything! Do doctors know about your flares and how long they last and the pain? Have they prescribed anything? I always ask too many questions so now I’ll let the members share their experiences.

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@becsbuddy Du tha Drs. think that Fibro mite b an Autoimmune disease?

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