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Moderator

Living with Fibromyalgia: Introduce yourself & meet others

Posted by Justin McClanahan, Moderator @JustinMcClanahan, Jan 30, 2024

Welcome to the Fibromyalgia Support Group on Mayo Clinic Connect.

This is a welcoming forum where you can meet people who know first-hand about living with fibromyalgia. Together we can learn from each other and share stories about challenges and coping strategies, setbacks and the things that help.

Find your comfy spot, settle in and introduce yourself. What is your experience living with fibromyalgia (i.e., treatment, symptom management, coping strategies, etc.)? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Profile picture for kimmeefibrofighter
kimmeefibrofighter | @kimmee | Mar 3 11:42am
In reply to @crewsr "I've had fibromyalgia since high school although it wasn't diagnosed for over 40 years. I was..." + (show)
Profile picture for crewsr @crewsr

I've had fibromyalgia since high school although it wasn't diagnosed for over 40 years. I was told I was healthy every time I complained to a doctor so assumed it was all in my head. Finally in my late forties a doctor told me what it was and that it was a real condition, not just that I was neurotic or attention-getting. I was so relieved I cried! One doctor gave me a prescription for hydrocodone with acetaminophen (5/325) for 2 a day. What a difference that made in my life! But now I have a new doctor and he won't prescribe it so I turned to using an edible CBD and THC concoction which works great (tastes gross). My fibro pain is greatly relieved as well as arthritis issues! I was against legalizing marijuana but at my age I will do anything for relief! Sad but true.

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@crewsr Im hapee 4 U!

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kimmeefibrofighter | @kimmee | Mar 3 11:50am
In reply to @quilterfingers "I am feeling guilty because my daughter has been diagnosed with it." + (show)
Profile picture for quilterfingers @quilterfingers

I am feeling guilty because my daughter has been diagnosed with it.

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@quilterfingers Oo! Im soorree. Pleeze dont feel guilty! Feel brave, that iz wat ur dauhter needz rite now & 4evor! She needz U 2 b strong so she kan b strong 2. So U 2 put on thoz boxen glovez & let her no tha she iz not alon & tha U & We R here 2 help her fite & we R all fiterz!

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quilterfingers | @quilterfingers | Mar 3 1:48pm
In reply to @kimmee "@quilterfingers Oo! Im soorree. Pleeze dont feel guilty! Feel brave, that iz wat ur dauhter needz..." + (show)
Profile picture for kimmeefibrofighter @kimmee

@quilterfingers Oo! Im soorree. Pleeze dont feel guilty! Feel brave, that iz wat ur dauhter needz rite now & 4evor! She needz U 2 b strong so she kan b strong 2. So U 2 put on thoz boxen glovez & let her no tha she iz not alon & tha U & We R here 2 help her fite & we R all fiterz!

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@kimmee

I know U R right. thank you for your encouragement.

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bftp70s | @bftp70s | 23 hours ago

Thank you for sharing. I am going to ask my doctor about that. The Ketamine infusions.
Diana

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ohiogirl48 | @ohiogirl48 | 20 hours ago

I'm a 78 y/o retired R.N. I've had fibromyalgia since my 30s (dx. with 14/18 tender points), and for some reason, the pain seems to be getting worse and harder to manage with all my other chronic pain issues. I have T2 Diabetes (controlled), CHF, a pacemaker, mild CAD, obstructive sleep apnea, hypertension (controlled), cervical (neck) stenosis, moderate to severe L/S spondylosis, moderate to severe osteoarthritis s/p R TKA, and moderate to severe osteoarthritis bil. wrists, severe dry eye syndrome, and morbid obesity (recent 60-pound weight loss). Now having moderate to severe pain in the left shoulder radiating down the left arm, including the elbow, and mild to moderate pain in the right shoulder also radiating down the right arm, including the elbow. I'm seeing ortho next month to r/o rotator cuff issues. I recently read that vitamin D3 with recommended additions may help with fibromyalgia pain, and I need dosing and frequency info. I'm also considering starting low-dose magnesium glycinate to help with muscle relaxation and sleep. Any new or currently effective treatment for fibromyalgia would be greatly appreciated.

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