Living with epilepsy - Introduce yourself & meet others

@ketomom
What a wonderful inspiration and a blessing. Living with seizures is difficult but certainly much easier when we can find the triggers and avoid them when possible & the right treatment combinations. Sounds like she also has a pretty great advocate.

Great job Mom!!
Dawn

Hello! I am the mom of a beautiful 19 year old who has epilepsy. Christina's first seizure when she was just seven months old. We quickly learned medical care for seizures is not the same and traveled to Mayo. She has been a patient at Mayo ever since. In fact, we just got back home after being in Rochester. Christina has been through a lot since the first seizure including brain surgeries. We have found that advocacy and hope can change things for the better. Our favorite treatment (if there is one) for seizures is dietary intervention. Christina has been on the original keto diet as well as another form called the low glycemic index diet treatment. She is also on a low dose of an anti seizure med.

Christina will be attending college soon and inspires us everyday.

@donnak69 Welcome to Connect!!

I would like to share a link with you. This has some great information related to Chiari-malformation.
http://www.mayoclinic.org/diseases-conditions/chiari-malformation/symptoms-causes/dxc-20249662
Curious if you have been seen in the Mayo Clinic Epilepsy Clinic? If not I highly suggest Dr. Britton is absolutely brilliant.
http://www.mayoclinic.org/diseases-conditions/epilepsy/diagnosis-treatment/treatment/txc-20117241
Thanks
Dawn

This topic is dear to my heart.

I was diagnosed with multiple different seizure disorders. I have partial complex (temporal lobe) seizures and grand mal seizures and pedimal seizures. I was diagnosed in 2000 shortly after a car accident resulting in post concussion syndrome.

One of the best thing you can do is educate yourself, family and friends. Be prepared. You will soon learn your patters and warning signs. They are certainly different for everyone. Here are some amazing tools that still help me today. My family practices the plan every other month. Since my recent seizure followed none of my pathologies we had to tweak our plan alittle. But I pray you and your physicians can figure out a great plan to prepare for and prevent any future injuries.
http://www.epilepsy.com/get-help/seizure-first-aid/seizure-response-plans/developing-my-seizure-plan-101
Staying safe
http://www.epilepsy.com/get-help/staying-safe
Symptoms/causes
http://www.mayoclinic.org/diseases-conditions/epilepsy/symptoms-causes/dxc-20117207
Be prepared
Dawn

I have been trying to figure out why and what to do to figure out if my Epilepsy is caused by Chiari Malformation and if they are related and what options I may have to figure it out. Every Dr. I have been to has been absolutely no help.

Hi @dawn_giacabazi @blath2000 @ketomom @hermsenk @punkin312 @inkdfrog @matermiracle @sall @stayfree @FaceNu @debburrington @beccahp @19aleckelly @scoobylisa @palmetto @lucky12 @tatiana01 @jontan @sylviaanne @TabMar @kevinkelley

I'd like to invite you to the new group dedicated to discussions about epilepsy and seizures. It's a space where we can ask questions, share tips and learn about living with epilepsy from each other. Whether you live with epilepsy or care for someone with epilepsy, please join us. Pull up a chair and tell us a bit about yourself.