Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself?
I am 70 with autoimmune disease. Two weeks ago I received the diagnosis of a R lower lobe lesion. Have interviewed with the Surgeon and surgery will be scheduled for next week. Waiting to hear when. I’m very anxious.
Hi @marylou705, I'm sorry to hear about the recent, new diagnosis of lung cancer. I can imagine you are anxious. I read in an earlier message that next week's appointment with the surgeon is for a biopsy. This is part of the diagnosis and staging process. With the biopsy and the other tests you've had the pathologist and your cancer care team will determine what type and stage of lung cancer you have. This information will determine what treatment options are best for you.
You're not alone in this journey Marylou. Please ask any questions you might have. Waiting is the hardest part and I'm sure you have lots of questions.
My husband has lung cancer (well, there's still some questions about the exact type of cancer) but it's in his lung. He also has COPD and had the lung biopsy and came through with flying colors. I was very concerned because it's very scary…but it wasn't painful, is pretty quick and recovery was minimal for him. He was high risk due to his COPD and breathing issues, but it was all pretty easy. I hope you'll find the same with the biopsy. It's always just so worrisome to find you have cancer. I have also had breast cancer twice and it's all you can think about at first. Stay positive and ask questions so you'll understand what's happening with the tests and diagnosis results and feel in control (because you are, more than you know!) Hugs
@shortshot80 Hi Nancy. I am so sorry for the loss of your husband. I pray you have strength to get you through this. Sending you hugs -Terri
Hi Marylou- I bet your anxious! The news that you recently received has put me in a tail spin too. I read, and now believe that anxiety can be a learning and preparing exercise. We worry about so many things that by the time the "procedure" happens we are well prepared! It's hard to think that you actually can take it one step at a time, but you can. Please keep us up to date!! Best of luck. Merry
Dearest Nancy: i am keeping you in my thoughts and prayers as you go through the loss of your precious and beloved husband. It is not easy when we loose a loved one.
I believe he is in a better place. When you look up at the sky I have a feeling when you notice the sun shines brighter he will be right with you.
Try to take care of you. I know sometimes that’s not so easy. Please remember we are with you.
Many cyber hugs,
linda – mentor
In the last 10 years research teams have been diligently working and discovering better ways to diagnosis and properly treat lung cancer to help us find a better quality of life. I know this well, because I am a ten year lung cancer survivor.
I feel very grateful that Mayo Clinic and other research hospitals are helping victims struck with lung cancer have more hope. There are now over 1100 therapies available and with proper diagnosis and proper treatment, diet and exercise and a good attitude we can learn not to worry quiet so much.
Another very helpful area to consider is the SMART
Program. I have been able to breathe better by changing my brain and accept my diagnosis with the practice, practice, practice of Mindfulness and Breathing taught by Dr Amit Sood. He has written several very helpful books and also has a TED X Talk that explains the importance of our Mind, Body & Spirit connection. I love the book, Happiness by Dr Amit Sood. Perhaps when you are in the waiting room you will find it a good read. I have!
So keep us posted. I’ll be watching.
All my Best
linda – mentor
Thank you to all for the encouraging replies to my email. I’m still finding my way on this website. This is complicated by having panic attacks, which I haven’t had for 40 years. Well you know what they say about people who work in the medical field! Probably the worst patients!
Virtual Super Hug. I'm so sorry for what you're going through especially at your young age and for your family and children. My husband is going through massive testing for his lung cancer right now and it's rough. All of this makes my breast cancer journey look like a cake walk. I admire your spirit and strength.
@marylou705 Hi Marylou. I am sorry to hear of your cancer diagnosis. I pray that your surgery and recovery are a success. Are you having your surgery at done at the Mayo?
Thank you for your reply. I’m not having my surgery at Mayo. I live in CO so am going locally. My chest still hurts from when I took a fall two weekends ago. I damaged the cartilage in my sternum and having trouble taking a full breath. I am dizzy due to a stroke about 4 months back. It never rains but it pours!
Hello, (shortshot80 – Nancy) Hi I have been here now over two years. I have two kinds of lung cancer. Here we can talk about anything. It has been a couple of weeks since I've been in here. I have had my second session of "immune therapy" Due for another on the 29th. I have had a stressful two weeks, My husband of 67 years passed away two weeks ago tomorrow. Have been busy getting things done, along with our kids for a "celebration of life on June 2. All four have been helping do everything. Obituary notice, Granddaughter did this. Great job too. Daughter doing all the paper work. I've been in "left field" all this time since he passed. Just really tired. Goes with the territory! My three boys are doing things also. I will be back in a day or two, just think I should be doing other things. But…….Things will get better, it just takes time! Nancy