Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@colleenyoung

Hi Joan, is this the same Joan as @sakota? So good to hear from you. I bet @merpreb will want to also say hi.

I'll PM you about merging your 2 accounts together.
Welcome back. I think you're kicking darn high. Thank you for your message of gratitude and hope.

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Joan!! Hello. Boy, it's great to hear from you. It sounds as if you've been having a rough time of it.

You say that when you get ill it's your meds that you forget about. Does this mean that your forget your meds and that makes you ill?

Merry

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@jp78

Hi I'm back and still kicking but just not as high!!! Its been awhile since I was in here but I am dealing with the adenocarcinoma, copd, diabetics, congestive heart failure........and the list goes on. As of now I am in assisted living, have had some flare ups of the copd, still have the cancer in my lungs which they keep watching. I go back in a couple of months for another scan. Right now I take 17 different medications , first it was low. like my magnesium, iron, potassium, then had a uti, 7 infusions for that . But on the whole I can still take care of myself, just more slow, I do get all my meds delivered to me because when I get sick, meds are what I forget about. So people...... I know days can get rough, but please count your blessings, thank the Good Lord for watching over you and giving you another day..... so enjoy it the best you can.......... Joan (sakota)

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Hi Joan, is this the same Joan as @sakota? So good to hear from you. I bet @merpreb will want to also say hi.

I'll PM you about merging your 2 accounts together.
Welcome back. I think you're kicking darn high. Thank you for your message of gratitude and hope.

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Hi I'm back and still kicking but just not as high!!! Its been awhile since I was in here but I am dealing with the adenocarcinoma, copd, diabetics, congestive heart failure........and the list goes on. As of now I am in assisted living, have had some flare ups of the copd, still have the cancer in my lungs which they keep watching. I go back in a couple of months for another scan. Right now I take 17 different medications , first it was low. like my magnesium, iron, potassium, then had a uti, 7 infusions for that . But on the whole I can still take care of myself, just more slow, I do get all my meds delivered to me because when I get sick, meds are what I forget about. So people...... I know days can get rough, but please count your blessings, thank the Good Lord for watching over you and giving you another day..... so enjoy it the best you can.......... Joan (sakota)

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@sglaza

Hello thieshafer,
You really need to check with your oncologist before you think about taking some THC to help with your nausea and eating. THC is contraindicated with some cancer chemotherapy drugs rendering them to be ineffective per scientific reports that have been posted on this blog.

Good luck.

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That's what I was afraid of. So I will only take what they give me:) Thanks for the warning. I apreciate it.

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I have my days. But most times I do pretty good. I just wish the radiation was done to give my throat a chance to heal.

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@lls8000

Hi Chris (@chris0126), welcome to Mayo Connect. I'm glad that you found us. We have other lung cancer patients here with Squamous Cell Carcinoma like @snoekie and @coryw . You've been though the ringer, but it sounds like you are in the home stretch of this set of treatments! That has to feel good. You have positives to focus on, even with the size of the largest tumor it sounds like the cancer hadn't spread beyond the lungs, and the chemo should take care of any cells that may have slipped by. Based on your profile photo you have family support which is so important too. Enjoy each day!
Have you been told how long they'll wait before doing the next set of scans?

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4-6 weeks is what I was told. Waiting to see now.

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@colleenyoung

Hi Chris,
I removed the image that you included with your post because it included your medical record number. Feel free to post it again without the MRN.

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Not sure how to remove it. Feel free if you know how and put it back up. No worries here. Thanks!!

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@chris0126

Hello all!! My name is Chris, I'm 66 years old and was diagnosed with 2 masses in my left lung in August. Both malignant, one small one and the other 8.5 Cm, with an artery passing through the middle of it. I have completed 5 out of 6 chemo treatments, and 24 of 30 radiation.
I have been looking for a good palce to find helpful information, and maye, just maybe, I have fianlly found it! I hope so!

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Hi Chris (@chris0126), welcome to Mayo Connect. I'm glad that you found us. We have other lung cancer patients here with Squamous Cell Carcinoma like @snoekie and @coryw . You've been though the ringer, but it sounds like you are in the home stretch of this set of treatments! That has to feel good. You have positives to focus on, even with the size of the largest tumor it sounds like the cancer hadn't spread beyond the lungs, and the chemo should take care of any cells that may have slipped by. Based on your profile photo you have family support which is so important too. Enjoy each day!
Have you been told how long they'll wait before doing the next set of scans?

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@thieschafer

Wow! Thanks so much. I am feeling better today after the first half dose of Zaprexa and after also two doses of Prilosec. I have copied this text into a document and will use it as a guide when things go south. Wondering about THC?

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Hello thieshafer,
You really need to check with your oncologist before you think about taking some THC to help with your nausea and eating. THC is contraindicated with some cancer chemotherapy drugs rendering them to be ineffective per scientific reports that have been posted on this blog.

Good luck.

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Wow! Thanks so much. I am feeling better today after the first half dose of Zaprexa and after also two doses of Prilosec. I have copied this text into a document and will use it as a guide when things go south. Wondering about THC?

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