Living Donor

Posted by fbgibbons672 @fbgibbons672, Sep 11, 2017

I am a match for my sister’s kidney transplant and will be heading to Mayo next month for evaluation. My sister has told everyone she knows about me, even refers to me as her “kidney mama”. I understand she is excited and I am as well, but now I wonder how I will feel if I don’t “pass” and she has to continue her waiting and dialysis. Its a huge responsibility and a huge honor to be able to do this, but…..

@dank

Six plus, years ago I received the gift of life, a liver transplant !
If it weren’t for my most generous donor and Mayo I’d not be here today, thank GOD !
In October I had my annual 6yr liver check up ( 21 appointments ). Not all of them were relating to my new liver, in fact everything regarding my transplant is going GREAT. I have a few other issues that the folks at Mayo are monitoring, treating, healing, and doing what ever miracle workers do.
Every year my wife and I look forward to our visit to Rochester and make a mini-vacation of it. For me life is going great and I pray that anyone afflicted with this disease will hang in there, follow the medical teams advice, and have the same results .
GOD BLESS !

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@contentandwell, I do have a transplant hospital nearby, It is only 45 minute drive. That is where I was originally listed for my liver transplant. But, due to complications, they sent me to Mayo, and that is where I received my transplant.

Mayo monitors me from a distance, and I return annually for my check-up. Every year they give me a standing order for my labs, and then my PCP writes it for the local lab with instruction to fax to Mayo. I usually get labs drawn 7:30 AM and I can go to the lab and get a copy later that morning. I like to be sure that they did get faxed. I also have a tacrolimus lab kit that Mayo supplies – the phlebotomist only has to fill the tube, then I put it the kit and I drop it in the outgoing mail. If I mail it on Monday, Mayo has it in my system on Friday. My transplant nurse will contact me about medicine changes. It is an efficient process for us.

If I am hospitalized, or need ER care, the attending physician will communicate with Mayo transplant Dept via a 24hr phone line. And this has occurred on several occasions. I also can call 24-7 when I need to.

We never considered transferring my care to local because of the level of care that Mayo was able provided for me. We return to Rochester annually for a 2 -3 day visit. I guess that someday, when the travel becomes too much, we will transfer to closer to home facility.
Rosemary

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I am a living donor the transplant was March 15, 2016
I did not know the recipient at the time. She was a very sick woman and has since had a new lease on life. I feel incredibly grateful to be part of this miracle. My health is great my recovery was great, I was sore of course and it took time to heal but i would do it all over in a heartbeat.

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@airsky21

I am a living donor the transplant was March 15, 2016
I did not know the recipient at the time. She was a very sick woman and has since had a new lease on life. I feel incredibly grateful to be part of this miracle. My health is great my recovery was great, I was sore of course and it took time to heal but i would do it all over in a heartbeat.

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thank you for posting this! If I have the timing correct, at this time next week, they should be finishing up with my surgery. I’m glad to hear that both you and the recipient are doing well.

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I donated a kidney to my sister in August 2015. We are both doing great. Our family (my father’s side) is affected by polycystic kidney disease (PKD) so many family members have undergone transplants mostly living donor. Besides a donor I have been on the caregiving side too as my husband had a living donor kidney transplant (2010) followed by a pancreas transplant (2015). He is now insulin free!

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@dank

GOD BLESS YOU !

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@dank, Thank you for your participation in this discussion. I believe that when recipients like you share experiences and send blessings, that we are able to give hope to others.
I invite you to stay in touch on this conversation, and/or to join in on any other discussion that looks interesting to you. At 6 years post transplant, I feel certain that you have a lot of practical experiences to share.
Rosemary

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@airsky21

I am a living donor the transplant was March 15, 2016
I did not know the recipient at the time. She was a very sick woman and has since had a new lease on life. I feel incredibly grateful to be part of this miracle. My health is great my recovery was great, I was sore of course and it took time to heal but i would do it all over in a heartbeat.

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@airsky21, Welcome to Mayo Clinic Connect.
I am a volunteer mentor, and recipient of a liver and kidney (2009) from an anonymous deceased donor. I will remember his generosity every day of my life, and I make taking care of myself my top priority as my way to honor him. I would not be alive with out the miracle of his gift of life. I only tell you that so that you will understand how sincere I am when I say, “Thank you and God Bless, you” for the miracle that you have participated in.
Thank you for sharing your beautiful experience.

If you are comfortable in doing so, would you tell us what led your decision to become a living kidney donor?
Rosemary

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@hkvanhouten

I donated a kidney to my sister in August 2015. We are both doing great. Our family (my father’s side) is affected by polycystic kidney disease (PKD) so many family members have undergone transplants mostly living donor. Besides a donor I have been on the caregiving side too as my husband had a living donor kidney transplant (2010) followed by a pancreas transplant (2015). He is now insulin free!

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@hkvanhouten, I want to welcome you to Mayo Clinic Connect. I am a volunteer mentor, and a recipient of a combined liver/kidney transplant from an anonymous deceased donor. Thank you for joining this discussion. And thank you for sharing your experience as a living donor.
May God continue to bestow His blessings on you and your family.
Rosemary

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When my brother was diagnosed with end stage renal failure I thought I should see if I would qualify as a donor. Less than 10 months later I was diagnosed with end stage renal failure, different reasons. He had a live donor, a friend of his wife, I did not. He died this last year, I’m still alive. Living with a different life style was not high on his list of things to do. Living with a different live style was and still is important to me to keep the kidney happy. Good luck.
mlmcg

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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No need to be same blood type. They can cross-match.

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I am 12 years post pancreas transplant and currently waiting for a kidney transplant (past 2 years). I am listed on UNOS, but am also looking for a living kidney donor. Today I came across this group on Mayo Connect. I want to say that the donation/transplant process involves a roller coaster of emotions for the potential recipients & donors alike. My own experience is that my 1st transplant 12 years ago came from a deceased donor after a miraculously short wait of 2 weeks. Now after 2 years waiting & looking, only 1 living kidney donor stepped up. It was my daughter. Our blood types, crossmatch/tissue typing was fine. We were both so hopeful. She went off to Mayo in Rochester, MN for donor evaluation the week of Thanksgiving. She ended up deferred for a variety of reasons and claims that she was told that she is an unsuitable donor. She was devastated and angry! I was disappointed but also concerned for my daughter and grateful that Mayo was looking out for her well being. My daughter feels like she was thwarted in doing something she desperately wanted to do and I still don’t have any living donor prospects. I realize that Mayo has a stellar reputation for excellence in Transplantation and I’ve seen how they treat each case/situation individually not just like a number or statistic. So in the meantime I’m trying to pray and wait patiently, take as good a care of myself as I can (so I stay transplant ready) and trust that the best plan for me will unfold at the proper time.

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@hkvanhouten

I donated a kidney to my sister in August 2015. We are both doing great. Our family (my father’s side) is affected by polycystic kidney disease (PKD) so many family members have undergone transplants mostly living donor. Besides a donor I have been on the caregiving side too as my husband had a living donor kidney transplant (2010) followed by a pancreas transplant (2015). He is now insulin free!

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@hkvanhouten, I saw this article on Mayo’s newsfeed a couple of months ago. Since you have mentioned family history of PKD, I wanted to share it with you.
https://connect.mayoclinic.org/champions/newsfeed-detail/?link_id=10571
Thanks for sharing your husband’s remarkable success.
Rosemary

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