1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 28, 2022
In reply to @btg "Hey there! Sorry so long to get back to you, last week we were here going..." + (show)
@btg

Hey there! Sorry so long to get back to you, last week we were here going through the plethora of various appointments they had for me, and it was a busy week. This week we were on pins and needles waiting to hear from Mayo if they were going to list me or if we were going home. Got the call late afternoon yesterday that they were going to list me and wanted me to stay! So this morning got my labs for listing and it is now official. I am now on the clock and waiting for the call, we’ll see how long it takes but extremely thankful for being listed and for the contact with everyone here in the beginning of this process.

All my best, wish me luck!

Bryan

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@btg, I'm throwing **confetti**. So good to hear your update of getting on the list.

Here are a couple of discussions full of tips from fellow members that you might find helpful:
- Waiting for the Call: What needs to get done at home before you go? https://connect.mayoclinic.org/discussion/waiting-for-the-call-what-needs-to-get-done-at-home-before-you-go/
- Packing question: What did you have ready for "the call"? https://connect.mayoclinic.org/discussion/packing-question/

REPLY
btg | @btg | Apr 28, 2022

Hey there! Sorry so long to get back to you, last week we were here going through the plethora of various appointments they had for me, and it was a busy week. This week we were on pins and needles waiting to hear from Mayo if they were going to list me or if we were going home. Got the call late afternoon yesterday that they were going to list me and wanted me to stay! So this morning got my labs for listing and it is now official. I am now on the clock and waiting for the call, we’ll see how long it takes but extremely thankful for being listed and for the contact with everyone here in the beginning of this process.

All my best, wish me luck!

Bryan

REPLY
2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 23, 2022
In reply to @rogero "Hola RoseMary, gracias por tus comentarios. Soy Rogelio de la torre, mexicano y vivo en la..." + (show)
@rogero

Hola RoseMary, gracias por tus comentarios.
Soy Rogelio de la torre, mexicano y vivo en la ciudad de Querétaro, México.
Hace un año y medio me detectaron un tumor neuroendócrino primario en intestino con metástasis en hígado etapa IV y durante ese tiempo he recibido diferentes tratamientos para evitar que el tumor en el hígado siga creciendo, sin embargo es muy probable que requiera de un transplante de hígado a mediano plazo (seis meses).
Quisiera saber de personas que hayan vivido algo similar; cáncer de hígado y posteriormente trasplante del mismo.
Desconozco los efectos de los medicamentos inmunodepresores que suministran para evitar el rechazo del hígado transplantado y el tiempo que se puede vivir con un hígado transplantado.
Desconozco si hay estadísticas del promedio de vida en personas con esta afección, ojalá alguien pudiera aportar información al respecto.
Deseo de todo corazón que puedas vivir muchos años mas con una excelente calidad de vida!

Muchas Gracias!

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Hi @rogero, You may also be interested in this related discussion:
- Liver cancer: I'm weighing treatment options including transplant https://connect.mayoclinic.org/discussion/liver-cancer-1/

@kathycaudle and @contentandwell had liver cancer and transplant. @alfonso22 is considering transplant as a treatment option, I’m hoping they can answer some of your questions.

REPLY
rogero | @rogero | Apr 23, 2022
In reply to @rosemarya "@rrichardparker, I want to re-welcome you to Connect. It has been a while since I have..." + (show)
@rosemarya

@rrichardparker, I want to re-welcome you to Connect. It has been a while since I have seen you in the transplant group. I am also a transplant recipient. I joined Mayo Connect because I wanted to meet and to learn from other transplant patients. I learned that as a recipient, I can share my own experiences to help others along their own journey. I have a feeling that you have learned a lot from your transplant, as well as how to manage your self care for 6 post transplant years.

Are you interested in supporting others who are like yourself?
I invite you to look thru the transplant discussions that are happening because there have been a lot of new members and conversations. You are always welcome to join in anywhere, with your own comments, questions, and helpful suggestions.
How can I help you get started?

Jump to this post

Hola RoseMary, gracias por tus comentarios.
Soy Rogelio de la torre, mexicano y vivo en la ciudad de Querétaro, México.
Hace un año y medio me detectaron un tumor neuroendócrino primario en intestino con metástasis en hígado etapa IV y durante ese tiempo he recibido diferentes tratamientos para evitar que el tumor en el hígado siga creciendo, sin embargo es muy probable que requiera de un transplante de hígado a mediano plazo (seis meses).
Quisiera saber de personas que hayan vivido algo similar; cáncer de hígado y posteriormente trasplante del mismo.
Desconozco los efectos de los medicamentos inmunodepresores que suministran para evitar el rechazo del hígado transplantado y el tiempo que se puede vivir con un hígado transplantado.
Desconozco si hay estadísticas del promedio de vida en personas con esta afección, ojalá alguien pudiera aportar información al respecto.
Deseo de todo corazón que puedas vivir muchos años mas con una excelente calidad de vida!

Muchas Gracias!

REPLY
1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Apr 20, 2022
In reply to @btg "Well, I have a date in Phoenix. My first VERY full day of appointments is April..." + (show)
@btg

Well, I have a date in Phoenix. My first VERY full day of appointments is April 18th. We’ll leave a couple days earlier so we can check in and get settled. Looking like at least a full week, likely a little bit longer to complete the assessment process at Mayo. They said that with my MELD score where it is they will more than likely ask us to stay in hopes of a transplant soon thereafter. I have a few more tests out here for them then we put the sails up and go. I’ll update when I can, and thank you all for not only being here but for your support. Be well and safe until then…

Bryan

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@btg - Brian, Just want to pop in to say "Hello". I hope you and your wife are settled in and ready for the many appointments and the stacks of information (if they still use paper).
I'm thinking of you, as I recall my own evaluation process. It is an adventure !

REPLY
kathycaudle | @kathycaudle | Mar 28, 2022
In reply to @btg "Well, I have a date in Phoenix. My first VERY full day of appointments is April..." + (show)
@btg

Well, I have a date in Phoenix. My first VERY full day of appointments is April 18th. We’ll leave a couple days earlier so we can check in and get settled. Looking like at least a full week, likely a little bit longer to complete the assessment process at Mayo. They said that with my MELD score where it is they will more than likely ask us to stay in hopes of a transplant soon thereafter. I have a few more tests out here for them then we put the sails up and go. I’ll update when I can, and thank you all for not only being here but for your support. Be well and safe until then…

Bryan

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I had my transplant 11/10/19 at Mayo Jacksonville...during the entire experience, I have never felt so cradled in love and confidence...stay positive!!! Blessings & prayers to you 🙏❤

REPLY
parrot53 | @parrot53 | Mar 28, 2022
In reply to @btg "Well, I have a date in Phoenix. My first VERY full day of appointments is April..." + (show)
@btg

Well, I have a date in Phoenix. My first VERY full day of appointments is April 18th. We’ll leave a couple days earlier so we can check in and get settled. Looking like at least a full week, likely a little bit longer to complete the assessment process at Mayo. They said that with my MELD score where it is they will more than likely ask us to stay in hopes of a transplant soon thereafter. I have a few more tests out here for them then we put the sails up and go. I’ll update when I can, and thank you all for not only being here but for your support. Be well and safe until then…

Bryan

Jump to this post

Best of luck to you, Brian. So glad you are able to move on with your transplant journey. Wishing you much health, happiness and renewed strength.

REPLY
btg | @btg | Mar 27, 2022
In reply to @rosemarya "@btg Brian, I am soooo happy to hear good news about your progress. And you are..." + (show)
@rosemarya

@btg Brian, I am soooo happy to hear good news about your progress. And you are absolutely correct that your good health is going weigh heavily in your favor as you look forward to eventual listing and surgery. My advice, if you were to ask, is to stay active and eat healthy foods.
I hope that gentle breezes will be with you as you set sail!
Brian, please send updates.

Jump to this post

Well, I have a date in Phoenix. My first VERY full day of appointments is April 18th. We’ll leave a couple days earlier so we can check in and get settled. Looking like at least a full week, likely a little bit longer to complete the assessment process at Mayo. They said that with my MELD score where it is they will more than likely ask us to stay in hopes of a transplant soon thereafter. I have a few more tests out here for them then we put the sails up and go. I’ll update when I can, and thank you all for not only being here but for your support. Be well and safe until then…

Bryan

REPLY
3 replies
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Mar 26, 2022

@jackie421blfdgurl - You did it !!!! You look so very happy with your furry buddy.

Do you want to post it in the discussion - Snapshots of hope: Life on the other side of transplant?
Here's how to do it:
1) click on the link below to go directly to the discussion
2) Read and enjoy the snapshots of hope
3} Go to Comment box
4) say a few words of hope, and repeat the steps you used to post your picture here 😉
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

REPLY
jackie421blfdgurl | @jackie421blfdgurl | Mar 26, 2022
In reply to @jackie421blfdgurl "Thanks .yes I see the words photo I shall try tomorrow" + (show)
@jackie421blfdgurl

Thanks .yes I see the words photo I shall try tomorrow

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Found my photo
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