Mayo Clinic Connect
My son has had a FibroSure test, which came back abnormal, needs a liver biopsy now. What will biopsy tell? And is this test accurate?
Liked by Teresa, Volunteer Mentor, sueleerock
I’m sorry , I meant PBC of the Liver. Things are up and down , my energy level is very low this week, having no sugar and bread is hard for me, but I know it’s very bad for my condition as well. My fibromyalgia has kicked in this week also, do dealing with that, lots of pain and my body is very tender , so I’m praying this is over soon. I’m putting on my big girl pants and I could be better at any time , who knows with this fibromyalgia Lol ! Trying to stay positive tho!!
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@sanai, Thinking of You and hoping that you are feeling stronger.
Liked by Becky, Volunteer Mentor
Won’t do biopsy, said the fibrosure test was good enough. He’s still has low appetite getting endoscopy Jul
@adah Good morning! I can tell from your posts that you are worried about your son and his liver fibrosis. The best thing for you and your son right now is not to worry. You’ll make yourself sick! The doctor will watch the lab/blood values for any changes. Your son should focus on helping/improving his liver function. He should focus on a plant-based diet, eat foods like veggies and citrus fruit, nuts, fish, healthy oils, and drink coffee and tea (who knew!) Also avoid over-consumption of food and alcohol. Focus on a good exercise program. I found this info on sites like WebMD, which is a reputable site. I hope everything goes OK for you and your son. Let us know how it goes!
Becky I agree with you soo…..very much ! I have had so many tests over the past 34 yrs now and changing my diet to “plant base” fruits nuts , remove all sauces, sugar has been an absolute answer to a wonder life, even knowing in my third stage and now “markers” are appearing in my Liver and the fact that I’m tired all the time , and have fibromyalgia , I can cope with an high tolerance for pain, i am determined to claim my healing and pray for the doctors over me, and always thank my savior for each breath that I take .
I’m soon will be sixty-six now and I’m looking forward for many years to come. Hang in there all that is in pain and remember that there is so many out there that need all of our encouragement !!!!
I've had a liver biopsy and it tells you if there is serious issues. I think its accuracy is very high on my list.
@racing212, Welcome to Connect. I am happy that you have joined this discussion and shared about liver biopsy from your personal experience. I also have had a liver biopsy on several occasions during my diagnosis and pretransplant period. Then I had one after my transplant surgery to "see" that everything was going well inside my transplanted liver.
Here is what I read about Liver Biopsy in https://www.mayoclinic.org/tests-procedures/liver-biopsy/about/pac-20394576
"A liver biopsy is a procedure to remove a small piece of liver tissue, so it can be examined under a microscope for signs of damage or disease. Your doctor may recommend a liver biopsy if blood tests or imaging studies suggest you might have a liver problem. A liver biopsy is also used to determine the severity of liver disease."
Racing212, I invite you to join into any of the discussion groups, I would like to ask you to tell me a little more about yourself. Have you been diagnosed with a liver condition? How might I help you?
Liked by Colleen Young, Connect Director, Kanaaz Pereira, Connect Moderator, Becky, Volunteer Mentor
Hello all. I’m curious if anyone has tried CBD oil for liber fibrosis & if so was it able to stall the progression etc
I’ve read many different articles and some state it increases liver enzymes & further damages the liver & others that have stated it’s beneficial. Recently diagnosed with fatty liver & moderate to severe fibrosis. I truly appreciate any input or testimonials. Thanks so very much
Welcome to Connect, @cwilliamson77,
You may notice that I moved your message to this existing discussion where we have several members talking about liver fibrosis, and I'd like to connect you with them.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
As the name implies, the main characteristic of fatty liver disease is too much fat stored in liver cells. Fatty liver develops when your body produces too much fat or doesn’t metabolize fat efficiently enough.
I’m tagging @contentandwell @julie3258 @musicflowers4u @vette241 @michellern @liaquat to see if they might be able to provide more insight.
How are you currently being treated, @cwilliamson77?
I’m actually not being treated yet as still having multiple labs being done etc
Go back to gastro next month. Seems they’re thinking it could be an autoimmune thing as well due to past lab work.
Liked by Kanaaz Pereira, Connect Moderator
@cwilliamson77, I am a liver and kidney transplant patient. I have no medical training, and I do not know the answer to your inquiry. However, I have experienced an extremely frightening journey with liver failure. Along the way, I have learned that the labs are going to be often and for a variety of reasons that are necessary to diagnose, monitor, and treat liver disease.
Here is what my doctors have instructed me to do since the very beginning of my liver disease history.: Use medications wisely. Only take prescription and nonprescription (over the counter) drugs when needed and only stay within the recommended doses. Don't mix medications and alcohol. It is also important to talk to your doctor before trying any alternative or herbal supplements and vitamins.
I hope that your GI (gastroenterology) visit goes well next month. Are you experiencing any symptoms that have raised the question of a liver condition?
Honestly yes! I have drunk heavily in the past and not so far past. I’m overweight. My fibroscan came back moderate to severe. But due to past labs (had to get a new Gastro as last one was lame honestly) my gastro is thinking alcoholic, but possible autoimmune causes as well. His receptionist called me after last labs and said may need biopsy. Will see. I’m always exhausted. Right now (and this may be tmi) I’m on day 13 of my period, but not sure if that could be related in anyway. I’m 41. I have a 9yo daughter and 3 yo son. Will see how it all plays out and go with the flow.
Thanks so much for your input and help.
@kanaazpereira Hi, @cwilliamson77 and I welcome you to Connect also.
When I was diagnosed with non-alcoholic cirrhosis (NASH cirrhosis) there was no talk of CBD oil so I have no knowledge of that at all. Despite my cirrhosis not having been caused by alcohol I was instructed to immediately stop drinking any alcoholic beverages, they can damage your liver further. My diagnosis was a bit different from yours, I had symptoms that were never thought to be that severe — declining platelet counts, shaky hands, being cold all of the time, tired — and then I started having HE (hepatic encephalopathy) episodes. HE episodes are times of confusion and irrationality. Even then I did not get diagnosed until a neurologist suggested liver. This was almost a year and a half after my first HE episode, which should have been a huge red flag. My ammonia count was high which is what caused HE. Cirrhosis was confirmed by a CT scan. Truthfully at that point, I had so many tests that I don't remember if I had a fibroscan. It does not sound familiar to me though.
When you learn more and find out what the problem is, please ask questions if I or anyone on here be of any help. I know well how confusing it can all be.
Liked by Teresa, Volunteer Mentor, Kanaaz Pereira, Connect Moderator
Thanks a bunch I do appreciate it
Liked by Teresa, Volunteer Mentor, JK, Volunteer Mentor
Just wondering if you were ever told you had sinus inflammation on catscan or mri? Before you were told you had Hepatic encephalopathy.
Liked by Rosemary, Volunteer Mentor
Was told i had H/E while in hospital without ct or mri. I've been in hospital often since October 2018
Liked by Rosemary, Volunteer Mentor, JK, Volunteer Mentor
@adah I'm not sure who you are referring to here, but if you are referring to me, no, I was never told I had sinus inflammation. HE does not show on tests, the only test that I know that they use in diagnosing it is testing for ammonia in your blood. When your liver is not functioning well it does not filter the ammonia out and it goes to your brain, causing HE.
I'm curious, why would you think a sinus inflammation might be connected?
Also, if you are responding to a specific person it alerts them to that response if you start it with the @ sign followed by their name that you see next to their post. Often the name is different from their identity, as in mine. I'm "contentandwell" but my identity is JK.
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