Life Without Modulators

Posted by Pug, Volunteer Mentor @ckscoville, 4 days ago

In the past, I recall that several folks were disappointed to learn that they were not eligible for a modulator or had difficulty tolerating one. On August 18, the Cystic Fibrosis Foundation is offering a peer-led CF Circle on the topic of Life Without CFTR Modulators.

This small group discussion is for adults with CF and parents and caregivers of individuals with CF who are not eligible for or not able to tolerate CFTR modulators (Alyftrek, Trikafta, Symdeko, Kalydeco or Orkambi). Join the conversation to connect with and find validation from others who understand what you are going through.

To Register: https://cff.zoom.us/meeting/register/1L04xSM0SSmizB6Gj_m9_A