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Lichen sclerosis--Has anyone else been told they're in remission?

Posted by ronag @ronag, Nov 29, 2024

Last week, after my latest 6 month check-up, my doctor told me I was in remission. She said I have the option of continuing twice a week applications of the clobetasol or not using the steroid until a flare-up occurs. I'd like feedback from others on what they've done and how that's worked out for them. Thank you for all input.

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rgold48772 | @rgold48772 | Dec 21 1:53pm
In reply to @blinken "@becsbuddy, thanks for your encouraging words. I worked as a lab tech.-medical assistant for 30 years..." + (show)
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@becsbuddy, thanks for your encouraging words. I worked as a lab tech.-medical assistant for 30 years so I am fortunate to have some background in how the medical system works. We need to be our own advocates these days in dealing with corporate medicine. Fortunately, I am in a small community where many of our doctors still treat us with personal care. The other side of the coin is that this small community is not near to major medical facilities and numerous specialists. I did read some of the previous contributors' posts and realize that I will need to test more tentative suspicion of a possible drug reaction myself. I intend to order the name brand drug this next time at much greater expense but if I find these itching welts subside, I will continue to use the name brand. Again, thank you.

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@blinken Clobetasol Propoonate, 0,05%
cream or jell works very well, it is very expensive. But you are using a very small amount, so it lasts for a long time. I buy it with Good RX discount card.

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ntownshend | @ntownshend | 6 days ago

I use clobetasol once a week to prevent a recurrence. So far, no additional flare ups since initial diagnosis and treatment!

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