Lichen sclerosis--Has anyone else been told they're in remission?

Posted by ronag @ronag, Nov 29 8:20am

Last week, after my latest 6 month check-up, my doctor told me I was in remission. She said I have the option of continuing twice a week applications of the clobetasol or not using the steroid until a flare-up occurs. I'd like feedback from others on what they've done and how that's worked out for them. Thank you for all input.

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rashida | @rashida | Dec 2 9:17am

In reply to @ronag "Thank you for sharing your experience. How often do flare-ups occur? How long do they last?" + (show)

@ronag my flare ups are random and can occur any time, usually when I am stressed. Sometimes they last several days and sometimes just a day. Taro Clobetasol ointment has worked for me each time.

cher51 | @cher51 | Dec 2 9:44am

I only take when I need it. The skin there is thin and it may cause you to want to rub. Don’t. Just put the cream on. Gently. It does come and go for me. Best of luck to all of you.

rashida | @rashida | Dec 3 8:18am

@cher51 for me, the ointment works better than the cream.

cher51 | @cher51 | Dec 4 9:29pm

In reply to @rashida "@cher51 for me, the ointment works better than the cream." + (show)

It is ointment I use. I respond to people in a short period of time. So sorry. Thank you.😀

kathy5645 | @kathy5645 | Dec 8 9:09am

In reply to @rashida "Yes, it does go into remission. I now use Clobetasol as and when I have a..." + (show)

Even in remission you should use clobetasol twice a week for life to prevent structural changes. I learned the hard way. I have a completely hooded clitoris and reabsorbed inner labia. Most docs still don’t know how to manage lichen. Look to the LSSN community and Dr Jill Kraft to learn how to manage lichen.