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ginyer (@ginyer)

Lichen Planopilaris...newly diagnosed

Skin Health | Last Active: Mar 31 11:43pm | Replies (38)

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@lorrainechavez

Is this the same as lichen planis? I cannot exactly remember the differential diagnosis that the locum tenums (?) rheumatologist gave me. My hair falls out the grows back but is vinstantly shedding at a rate where i NEVER get any growth longer than a shoulder length. What are your other symptoms? I have psoriasis and PsA and have been on biologics for 20 years. I also got a differential diagnosis of Bechet's syndrome at the same time. My ENT and dermatologist are so slow to respond i have yet to get a biopsy to confirm anything.

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Replies to "Is this the same as lichen planis? I cannot exactly remember the differential diagnosis that the..."

I could be wrong as I've just started trying to research the situation, but I think the difference is that the planopilaris is strictly the scalp as opposed to oral, etc. I had had bouts of hair shedding over the years, but it would usually stop..this was so much worse and has been like a year and a half since it got so extreme but I was taking vitamins, etc., that I thought would promote regrowth, but had no idea that is no option with this autoimmune disorder or that I even had an auto immune disorder. it cannot regrow once it is gone with this diagnosis. I have other conditions such as diabetes, etc., but nothing that contributed to this I don't think. I hope you are able to get a biopsy if one is needed…I was lucky that thankfully the dr noticed and acted quickly. I was actually at the visit for an unrelated issue so For that I am grateful.