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Lewy Body Dementia with Parkinson
Parkinson's Disease | Last Active: Mar 18, 2022 | Replies (48)Comment receiving replies
I found out this week that my husband was diagnose with Parkinson-Lewy body dementia. We have only been married for a few years, but been together for 4 years. there is a huge age gap between us but we didn't care. He is the love of my life. according to the phases. he is in phase two. I am a nurse but it is so different taking care of patients then you're husband. I've been reading everyone's post and getting ideas. I welcome any suggesting's.
Replies to "I found out this week that my husband was diagnose with Parkinson-Lewy body dementia. We have..."
Hello @scampbell0163 .
As it's been a couple of weeks since you posted about your husband's diagnosis of LBD I was just wondering how you were both adjusting. Do you think you are getting the information and support you need as a caregiver? How is your husband managing?
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Hello @scampbell0163 and welcome to Mayo Connect,
I am so sorry to hear of your husband's recent diagnosis of Lewy Body Dementia (LBD). As you probably know, LBD can often be very difficult to diagnose as it has many of the same symptoms of Alzheimer's and other types of dementia. You were fortunate to get a correct diagnosis in phase 2 of the disease as the treatments can vary widely.
Mayo Clinic does have expertise in Lewy Body Dementia. Here is some information about the disease, treatments, and care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025.
You may also be interested in this Mayo Clinic Q&A on Lewy Body Dementia, https://newsnetwork.mayoclinic.org/discussion/new-international-guidelines-issued-on-dementia-with-lewy-bodies/.
I would also like to invite you to our Caregivers' Group that is mentored by Scott, @IndianaScott. Here is a link to a discussion on LBD that you might find helpful, https://connect.mayoclinic.org/group/caregivers-dementia/
You said you are looking for suggestions. Could you share what type of suggestions you are looking for? For example, are his problems now mainly gait/falling, speech or swallowing, etc.? Has physical, occupational, or speech therapy been used?