← Return to Late Stage Primary Sjogren's Syndrome


Late Stage Primary Sjogren's Syndrome

Autoimmune Diseases | Last Active: Jul 13, 2019 | Replies (6)

Comment receiving replies

Please forgive me if I posted in the wrong place. Here it goes.... I have Sjogren's, Fibromyalgia, Raynaud's, Osteopenia, High Blood Pressure, Kidney Disease, Skin sores and Scaly Patches, Dry Skin, Reflux, Infections from Allergies, Over Weight, Arthritis, Tinnitus, Hair Loss in my ear to, Thyroid, Constipation, Hot Flashes and Sweats, NOW a small spot on my scull/brain (?) on the front right side near my eye and temporal area, maybe early Brain Fog "Senior Moments" / light Dementia - I am 65 now. I have started having a little tingling there but it is spreading toward the left back side and down my neck and shoulders. Ohhh yea Depression and Anxiety. I saw a Neurologist and he showed me my brain scan. Then he show me another persons brain scan with very advanced problems of dementia. The Dr. said pointing to my dime size white spot "tumor" and said you do not have any problems with dementia. Since then I have developed the tingling / fire cracker effects in my head. When I laugh to hard I feel like I am going faint and fall. I love to laugh but that is scary. I take 8 or 9 bottles of medications a day. The tingling has me concerned. I read a post on Primary Sjogren's then the up to date diagnosis and results it is mind boggling. I was diagnosed at 28 or 29 years old but it started at with dry hands at 19. I joined the Air Force at 23 years old then the symptoms increased including fatigue and migraines.

Jump to this post

Replies to "Please forgive me if I posted in the wrong place. Here it goes.... I have Sjogren's,..."

Hello @tigerlilly -- You mentioned that you take 8 or 9 bottles of medications a day. Have you thought about talking with your doctor or maybe a pharmacist to review the list of your medications to see if there are any interactions between any of your medications? What is the symptom that is hardest for you to manage?

@tigerlilly I totally agree with @johnbishop about medication interactions! All medicines have side effects that we don’t notice until 2 or more get together and cause havoc. I have an app on my phone that really helps me. It’s a free download from the App Store. I had really bad brain fog and using the app Drugs.com, I finally traced it to 2 of my new medications. No more brain fog! Talk to a pharmacist or use the drug app and then have a talk with your doctor. And let us know how it all turns out!