Klonopin taper

Posted by dawgbone @dawgbone, Jul 31, 2017

I have been on some kind of benzo for almost 40 yrs. I am trying to taper from 1.5-2 mgs of klonopin daily . Began in mid may 2017 and my last cut was very small on 7-2-17 to get to 1mg. Honestly feels like i am dying. I also take trazodone 75 mgs and 4 drugs for high blood pressure. I have been researching gabapentin and seroquel to help with the withdrawal symptons. Please offer any suggestions or help. I am 69 yrs old and cant even leave my house to visit my kids and grands. Thank you for any help!

Liked by Parus, Leonard, clutch, Ellen

I feel like I am dying too. Literally. I have been on 2 mg daily of clonazepam for about 8-10 years. My dose hasn't been changed in over 3 months and I think that I am having withdrawal symptoms while on the drug. I have anxiety and nausea all the time except when I'm asleep. I'm irritable and impulsive most of the time. I just plain feel SICK all the time! I wish I could just die.

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@falon

I feel like I am dying too. Literally. I have been on 2 mg daily of clonazepam for about 8-10 years. My dose hasn't been changed in over 3 months and I think that I am having withdrawal symptoms while on the drug. I have anxiety and nausea all the time except when I'm asleep. I'm irritable and impulsive most of the time. I just plain feel SICK all the time! I wish I could just die.

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Hi – many of you have talked about tapering off of clonazepam (Klonopin), and I'd like to check in and see how you are doing. I think that many members in this discussion will benefit from your responses.

@lorraine59 – I know you mentioned you and your doctor decided to keep you on this medication. How is it going?

@falon – you talked about feeling like you are dying yesterday. How are you doing? Did you by chance get to connect with your doctor about the symptoms you felt you were having while on the clonazepam (Klonopin)?

@judith2 – how is your tapering process going? Are you still taking .5mg at bedtime?

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@lisalucier

Hi – many of you have talked about tapering off of clonazepam (Klonopin), and I'd like to check in and see how you are doing. I think that many members in this discussion will benefit from your responses.

@lorraine59 – I know you mentioned you and your doctor decided to keep you on this medication. How is it going?

@falon – you talked about feeling like you are dying yesterday. How are you doing? Did you by chance get to connect with your doctor about the symptoms you felt you were having while on the clonazepam (Klonopin)?

@judith2 – how is your tapering process going? Are you still taking .5mg at bedtime?

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Hi Lisa, my doctor's appointment is on Thursday. She's going to tell me I'm crazy. Maybe I am. Things are a tiny bit better today. Nausea not as bad. Thanks for caring!

Liked by Lisa Lucier

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@falon

I feel like I am dying too. Literally. I have been on 2 mg daily of clonazepam for about 8-10 years. My dose hasn't been changed in over 3 months and I think that I am having withdrawal symptoms while on the drug. I have anxiety and nausea all the time except when I'm asleep. I'm irritable and impulsive most of the time. I just plain feel SICK all the time! I wish I could just die.

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@falon– Greetings! Just noticed your post and thought I would connect with you. I've been on klonopin and then the generic clonazepam for over 20 years. I started taking it for anxiety and panic attacks. It took me about a year to confront my issues. They began to have such a big impact on what I thought I would do each day and because each time I had an attack depending what Iwas doing those things I began to cross off my list of "no go's". It wasn't till I had several sessions with a physiatrist that he perscribed the 1mg. klonopin.
Slowly, but surely after taking it I began crossing things off my "no go" list and felt like I was getting back my life.
For me Falon I never felt the need to increase my dosage for some reason. I think because it made such a difference in my life I just got used to it and really didn't give it a lot of thought. I found it real helpful (and still do) that I keep a half a pill in my pocket when I know I'm gonna fly or do other things that were on my list.
In all the years I've had it with me I think I took it once. It just helps me mentally know I have it just in case.
Sorry to hear about what you are going through and please know we here on Mayo Connect care about you & each other!
Please try and erase those harmful thoughts about dying. I understand how you feel, but that is a terrible option to consider.
Keep talking with us and we will do our best based on our own experiences how we got through it and I know you will as well!
Most seem to take their clonazepam before bed, but I chose to take it in the morning. You might consider that if you take in the evening. Jim @thankful

Liked by Lisa Lucier, Parus, LizAA

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@falon Hello. As I read your words I can empathize with how you are feeling. You sound frightened, confused and alone. If you are comfortable in doing so continue sharing here at connect. There are those of us here that have struggled with the benzodiazepines. I am sorry you are feeling like you are dying. A lonely and fearful place to be. How are you doing?

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Hi Parus, thank you for your kind words. I am trying hard.

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@falon

Hi Parus, thank you for your kind words. I am trying hard.

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@falon Good for you!! A few steps at a time. Be gentle with yourself.

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That scares me — you coming off klonopin. I have been on the drug for about 30 years and my doctor (new psych.) wants me to get off off of it. He and a PA recently told me that long time use in elderly patients have a high propensity to develop dimenteshia – especially at older ages. My mother had alzheimers and two of her relatives had it – I'm afraid it will happen to me. Thanks for the information about trazadone and serequel — good to help me get off of it. I've been weened off from 1.5 three times a day to two times per day. This is only my second week and I can't tell a difference. He will probably take me down lower on my next visit. I hope your psych. gets you off of it totally and gives you something else that will help you get off off of it. Maybe some other readers will read this and think twice about taking it or getting off of it. I read recently that the state of Georgia has banned pharmacies from dispensing it…I wish someone had told me years ago how potencially dangerous this drug can be to some people. Good luck on coming off of it. GOD Bless

Liked by Parus, falon

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@chrpeters23

*Personal opinion/experience disclaimer* — Results may very

I always view "studies" as not giving up until they find something negative about the subject matter, which in most cases will always happen. CBD falls perfectly into that category. There are a few CBD shops where I live and the employees are always very knowledgable. I have been upfront with them about my anxiety and panic disorder, as well as my klonopin taper. The first CBD oil/vape pen I tried, I didn't think was beneficial and made me feel a little off. So that's when I discovered not all CBD oil is created equal. I decided not to swear it off from one type I tried, that didn't work for me. So I recently went to a different (more reputable) place and found some that has been working extremely well. From my discussion with the employee, there is still a stigma amongst a lot of the general public and those in the medical community, however the tide is shifting and it is becoming a more legitimate/accepted source of "medicine".

Of course, it may not work for everyone or may cause different effects, however the general consensus has been that it has drastically helped in relieving anxiety for many people. If you do further reading on it (there is plenty) the its benefits of stopping seizures, inflammation, physical aches and pains, etc. is amazing. My personal opinion is of course many medical professionals will be skeptical or advise against it because it will directly interfere with their prescription writing..aka money. However, my doctor had the attitude of "why not" – give it a try and if you notice it helping then great. If not, stop. She said she has noticed it being a more growing, popular aid in many going through the same situation as me.

As I am approaching the end of my taper, the "jump off" point is something kind of scary to me. Having CBD as an aid to transition is rather comforting. No that does not mean its a dependency. Trust me, benzos are obviously a dependency. CBD is more of a tool for me in my "coping kit." I do not always take it, I have absolutely no cravings or itching for it. It is not like nicotine. Personally, it is a natural, beautiful alternative to the last thing I want to be on…pills. Of course, depending on your situation and medications, this varies for everyone. Again, for me, it works wonderfully for my anxiety, panic, mood stabilization, and sleep.

I have a tincture of oil that I take orally (under the tongue) and a vape pen I can carry around in times of sudden panic/anxiety. I hate to compare it, but you can say it's like a xanax (fast acting/not long lasting…typically an hour) — but without the hellish qualities of a benzo. I went into CBD with an open mind after hearing all the success stories. I was excited for a natural alternative, that didn't require a doctor's slip. I'm very, very glad I did.

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What to go chrpeters23 @chrpeters23.

I too am tapering from 2 – 3 mg (varied history) of Klonopin. And I too have been using CBD to help with my taper. I initially tapered on my own without knowing the wonderful effects of CBD a little over one year ago and took myself from 3mg to 1.5mg. That was quite difficult.

I've been tapering since early December 2018 with CBD and have access to both recreational as well as medical grade CBD here in Canada. For me, CBD works wonderfully. I feel quite relaxed when I take CBD drops but in a much more natural way than the drowsy effects of clonazepam. I just recently tapered to 0.5mg (from 0.625mg) and will be holding this dose until I can restore my sleep issues. I'm taking melatonin to help with this which works on and off. I take it as needed to fall asleep (3mg – 10mg) depending.

CBD is pretty wonderful stuff from my perspective although I understand this doesn't work the same for everyone.

Liked by fluffykitty

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@1mountaingirl86

That scares me — you coming off klonopin. I have been on the drug for about 30 years and my doctor (new psych.) wants me to get off off of it. He and a PA recently told me that long time use in elderly patients have a high propensity to develop dimenteshia – especially at older ages. My mother had alzheimers and two of her relatives had it – I'm afraid it will happen to me. Thanks for the information about trazadone and serequel — good to help me get off of it. I've been weened off from 1.5 three times a day to two times per day. This is only my second week and I can't tell a difference. He will probably take me down lower on my next visit. I hope your psych. gets you off of it totally and gives you something else that will help you get off off of it. Maybe some other readers will read this and think twice about taking it or getting off of it. I read recently that the state of Georgia has banned pharmacies from dispensing it…I wish someone had told me years ago how potencially dangerous this drug can be to some people. Good luck on coming off of it. GOD Bless

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@1mountaingirl86
As I read your words I was reading your fears. There are times our fears can overtake and consume us. I understand and even feel your fears. All you can do is your best. Not everyone experiences difficulties in weaning off of benzodiazepines. Oft we only hear about the negative things. Try to do something you enjoy to help you get through this time. A hard thing to do with the not knowing what to expect.

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@parus

@1mountaingirl86
As I read your words I was reading your fears. There are times our fears can overtake and consume us. I understand and even feel your fears. All you can do is your best. Not everyone experiences difficulties in weaning off of benzodiazepines. Oft we only hear about the negative things. Try to do something you enjoy to help you get through this time. A hard thing to do with the not knowing what to expect.

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Hi Parus. I have been on Clonazepam for 20 years. It helped me thru my rough years. Change of life was hard. It helped me get thru. I was afraid to go off of 1.5 mil a day because of all the videos I watched of people withdrawing. Fear of going off kept me taking it. But I decided to go for it because of all the bad news on Benzos today. I started in November 2018. I am tapering 8/10% every week or 2 weeks. I decided to let my body tell me if I was going too fast. Well, I am down to .25 mil. at bedtime. I also take melatonin at night. I am doing great. I have not had any withdrawals. I just wish I would have gone off sooner. Tell everyone that not all people have difficulties weaning off. Just like you posted. Best wishes to everyone. Keep up your good work, you can do it. @parus. @lisalucier

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Thanks @fluffykitty, appreciate the positive follow up. Good to have some a success story on this thread.

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@gettingbetter75

Thanks @fluffykitty, appreciate the positive follow up. Good to have some a success story on this thread.

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@gettingbetter75 Sounds like you are doing really good on your taper too. Keep up your good work. We both will be free before summer.

Liked by Parus

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Hi @fluffykitty, I am curious to know if you've had any sleep issues and if so, are you doing or taking anything to help fight this off?

As I mentioned, I'm taking CBD and Melatonin at night for varying degrees of success for sleep specifically. It's not bulletproof but it absolutely helps. If I could get a handle on my sleep issues I think I'd be set.

I'm also using the Headspace app. They have some great guided meditations on both sleep and anxiety. I highly recommend both packs.

Thanks.

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@gettingbetter75

Hi @fluffykitty, I am curious to know if you've had any sleep issues and if so, are you doing or taking anything to help fight this off?

As I mentioned, I'm taking CBD and Melatonin at night for varying degrees of success for sleep specifically. It's not bulletproof but it absolutely helps. If I could get a handle on my sleep issues I think I'd be set.

I'm also using the Headspace app. They have some great guided meditations on both sleep and anxiety. I highly recommend both packs.

Thanks.

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Good morning @gettingbetter75 I am doing better sleeping. When I first tapered I would wake up 3 hrs. later. Then take a couple hrs to go back to sleep. I had to turn my clock away from me so as not to look at the time.

I try not to look at any electronic devices at least 2 hours before bed. And I take Melatonin, 5 ml with my .25 ml Clonazepam. Also in the past I listen to Letting Go of Stress CD. By Emmett Miller and Stephen Halpern both MD and PH. D. I like the muscle relax/tension one. These helped me a lot. Also I walk a lot in the fresh air and try to get tired everyday.

Liked by Parus, Leonard

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