Kidney Transplant: Does your creatinine bounce around?

Posted by hello1234 @hello1234, Feb 1, 2023

Hi all,
I am a post kidney transplant patient. My creatinine has been pretty reliable and steady. In August, five months ago, I was diagnosed with BK virus and my immune suppression was reduced. I am taking 250mg bid Mycophenolate and 6mg Envarsus XR (Tacrolimis). Currently, I do not take Prednisone. My last labs showed an increase of creatinine and a lower GFR. Has anyone experienced something like this?

Interested in more discussions like this? Go to the Transplants Support Group.

Rosemary, Volunteer Mentor | @rosemarya | Feb 8, 2023

In reply to @kfn57 "Yes, both numbers have jumped a couple of times. I contribute it to that I don’t..." + (show)

@kfn57 - I want to welcome you to Connect. I see that this is your first post, and I want to ask you when you had your kidney transplant?

For some patients, there can be variations until the body and medications and new kidney are adjusted. It could also be dependent on a patients pre transplant condition. My transplant was too long ago (2009) for me to remember these specific details .

I am happy that members like @hello1234, @l0lag0lag0b3, @roxanne12345 have more recent experiences with variations with creatinine levels to share with you.

Rosemary, Volunteer Mentor | @rosemarya | Feb 8, 2023

@hello1234,@l0lag0lag0b3, @roxanne12345
Here is a discussion about BK Virus that will be more visible and attract more members with that particular concern. 🤍
- Transplant: BK Virus
https://connect.mayoclinic.org/discussion/transplant-bk-virus/

kfn57 | @kfn57 | Feb 8, 2023

In reply to @rosemarya "@kfn57 - I want to welcome you to Connect. I see that this is your first..." + (show)

June 19 will be four years post transplant.

hello1234 | @hello1234 | Feb 8, 2023

In reply to @kfn57 "Yes, both numbers have jumped a couple of times. I contribute it to that I don’t..." + (show)

Hi @kfn57 😊
It's so nice to meet you! Congrats on your fourth year transplant anniversary! I am approaching my three year anniversary. Thank you so much for sharing your experience with varying creatinine levels. I am happy to hear that increasing your water drinking has been helpful. In your 4 years, did you experience any infections or mild rejection episodes? I had CMV, and now I have BK virus so any increase in creatinine always stresses me out.... It's nice to know that sometimes it's as easy to fix by drinking more!

kfn57 | @kfn57 | Feb 8, 2023

In reply to @hello1234 "Hi @kfn57 😊 It's so nice to meet you! Congrats on your fourth year transplant anniversary!..." + (show)

I am not good with water and I will let you in a couple days how increasing hopefully helped. Tomorrow is my monthly infusion of one of my anti rejection meds.

kfn57 | @kfn57 | Feb 8, 2023

In reply to @hello1234 "Hi @kfn57 😊 It's so nice to meet you! Congrats on your fourth year transplant anniversary!..." + (show)

No I have not had any rejection experiences. I have experienced infections one being cdif. That was a tough one.

hello1234 | @hello1234 | Feb 8, 2023

In reply to @kfn57 "No I have not had any rejection experiences. I have experienced infections one being cdif. That..." + (show)

@kfn57
Yes, C-diff is very tough. I never had C-diff but my girlfriend developed it after surgery. It took a very long time to recover. Was that your experience too? Did you develop C-diff after surgery too?

kfn57 | @kfn57 | Mar 24, 2023

In reply to @hello1234 "@kfn57 Yes, C-diff is very tough. I never had C-diff but my girlfriend developed it after..." + (show)

After an antibiotic was given.

mariags | @mariags | Mar 30, 2023

hi, im posting for the first time here for concern of our son (32yrs old) who had a tranplant 4 months ago. Living donor from his dad.
his challenge is low WBC. it is 2.8. neutrophil 1.97. he had the gastrohil injections ( 6 injections) they raise the wbc for a week but then back down. also his creatinine is high 181 and eGFR 47. he is taking myfortic 180 and tac 7. no predisone. and taking atovquone. he also had a very slight increase in cmv ... just at 35 last week. we dont know what to do further to get him to start living "normal" becasue of the low WBC. still quarantining, working from home. he had a biopsy about a month ago and all seemed good. any suggestions would be greatly appreciated.