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Kidney Transplant: Does your creatinine bounce around?
Hi all,
I am a post kidney transplant patient. My creatinine has been pretty reliable and steady. In August, five months ago, I was diagnosed with BK virus and my immune suppression was reduced. I am taking 250mg bid Mycophenolate and 6mg Envarsus XR (Tacrolimis). Currently, I do not take Prednisone. My last labs showed an increase of creatinine and a lower GFR. Has anyone experienced something like this?
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Hello @hello1234 - I believe Acyclovir/Ganciclovir is used for CMV. In my view sooner or later .. I will have to move on to a different world, but while I live .. I want to encounter Medicine as a noble profession !
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2 ReactionsThank you @l0lag0lag0b3 😊
I really appreciate discussing our challenges together. Your experience, knowledge and wisdom are very helpful to me.
I am tested regularly for CMV to see if there is a recurrence and of course I am tested for BK now since it's active now. Are you also tested occasionally for EBV or any additional infections?
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1 Reactionhello, @hello1234
Under my new Dr got checked for BKV/CMV in Jan 2023, prior I was checked for BKV & CMV was Oct 2020 (hard to believe)
EBV checked prior to the transplant.
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2 ReactionsThank you @l0lag0lag0b3 😊
Under your new nephrologist, are you testing for CMV and BK annually or every six months? I would like to test every month since a delay in identifying these viruses has such huge consequences. I felt sick with CMV, so that is how I was diagnosed with CMV. But BK was just a routine test that found it. I had very high levels of BK in the urine and lower in the blood. It's been almost six months and I still have it. When I finally clear it, I will want to test often!
@hello1234, No clue what my schedule will be, I know for the first 3 years there is a protocol, after that it is subjective... that is my guess.
If I find - I will share.
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2 ReactionsYes, thank you @l0lag0lag0b3 😊
Please share any good stuff that you learn from your new excellent doc! Thank you again for the awesome conversation.... Your posts were very helpful to me.
I have BK test every two to three weeks. It’s not going down much, as my white count is so low. I’m not taking any MMF at this time, but take more prednisone and a small amount of Tacrolimus.
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3 ReactionsThis has happened to me also. I think it’s a common thing during the first few months.
Hi @roxanne12345 😊
So you have BK virus too? I was diagnosed in August with >100 million viral load in my urine and 500 in my blood. I was taking 500mg bid Cellcept and 6mg Envarsus XR when I was diagnosed and to fight the BK, my Cellcept was reduced to 250mg bid and my Tac is targeted between 6 and 8. It's almost 6 months and I still have BK, but the viral load is slowly coming down. When were you diagnosed and what's your current viral load? Also, are you taking 5mg or 10mg Prednisone with your Tac?
Sounds like we are both going through the same experience! It's nice to discuss this with someone that is going through the same experience! Thank you for sharing ❤
Yes, both numbers have jumped a couple of times. I contribute it to that I don’t drink water like I should. So dr said increase the water.
My creatinine was down the lowest ever .97 now 1.2, GFR was 68 now 47, so upping the water.