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Hi, I was wondering if anyone can give me more info on what to ask the transplant team when I go for my evaluation. I’m struggling with weather dialysis is better or a transplant. I know any surgey has risks.
@sevkira My husband had a living donor (our brother-in law – unrelated). The transplant was coordinated at just the right time, and my husband never went on dialysis before transplant. It depends on your particular situation.
Ok I was going to go with pd if I ever get to that point. I can’t see how I could go to a center I have a set work schedule don’t see how it would work without quitting my job. May I ask was your transplant through Mayo Clinic.
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@oregongirl, Yes, I know the misery of waiting.
You are among many ‘champion waiters’ when you post in the transplant community! Definitely not alone in your impatience. I have learned to always ask, at the time of the testing, when and how I will learn the results. I have also learned that each facility and practitioner has a preferred method. And, it is correct that some tests do take longer to process than others. Most important is that if several tests are given, that time might be needed to compare the results for an accurate diagnosis.
I agree that you should make a phone call.
I’m thinking about you. Keep in touch.
Sevkria, How old was your husband at the time of the Transplant? I really do not wish to wait three more weeks to get my analysis from the doctor. I think he is on Christmas Break. There must be someone in his office to answer my questions. I am calling today. I have ever done this. All of my specialist at the University.
I will keep in touch The doctor did say that one test or two had to be sent out and it takes about three weeks. I saw him about two weeks ago. That enough time. I will let you know how it goes. Since I grew up in Minnesota, I would be open to meeting with a doctor at Mayo, Are all the Mayo’s the same? I live in Texas, and I know there is one in Arizona.
@oregongirl,, I think you were directing this question to @gaybinator.
@oregongirl My husband was 60. Our BIL was 51.
Well, I am 75, nearly 76. before this happened I could run circles around any younger person. In the mirror, I looked my age, but in my and body I was about 50 What a way to go Huh? I guess i would not want my children giving up a Kidney. It is obvious why. We will see, maybe I have nothing to worry about. I am already on medications for my RA. The drug I take is taken once a week, 6 pills. I take them Sunday after church. Usually by Tuesday I am out of it and near vomiting all day…no appetite. It is so strong but I have no pain in my body and I no longer have to use a cane. This all came on very suddenly. I have had the RA but have learned to live with it. But my legs started giving out and I was falling. Falling is for OLD people, not me. I am going to come off the pills as I cannot eat or hardly get around fr about two days a week. I will do as much exercise as I can to get my body in shape and feeling better. Hope so anyway. Thanks for listening.
It sounds as if you are not listening to your body and have not admitted you are 75. Yes, it is hard to to live in a 75 year old body, when the brain wants to be 20 again. For me using a walker is better than falling. The first time I fell I could not get up and was on the floor for over 6 hours. My second fall I could have killed myself, if I had hit my head but I was able to get up, stop some of the bleeding, and call 911. My third fall I said that is it, "No more falling". I have not fallen since. God is trying to talk to you. I have found out that, when hitting me over the head with a 2×4 did not work He will get out the "2×4 with the spikes until I will listen". You are getting OLD and it is time to listen to your BODY.mlmcg
@oregongirl It is not necessary for a living donor to be related. Our BIL was not. And blood type is a moot point, with cross-matching.
Do you have any percentages of how many take and last for a few years?
Mimcg…I was using a cane. But, the doctor started me on a new pill for RA and my pain went away…but the pills are horrible. I agree j I am getting old. I was not stumbling or falling. But, that has started again. So, the cane is my friend again. It just seems impossible..that life went that fast. I will think long and hard if they ask me about kidney transplant. I have lived a wonderful life. I really do not need many more years. I know where I am going. I would definately say transplant if I were 35 yrs old. Lets hope doctor has some good news for me.
@oregongirl, I invite you to read thru this discussion where many of our members have shared some experience with dialysis. @oregongirl, after reading the posts in this discussion, what questions would you like to ask.
I also want to mention the following members who have participated in this discussion in the past who might be available to talk to you.
@sevkira, @peterm53, @ca426, @lcamino, @aljoey, @dshaver, @mlmcg, @fauneconner, @coastalgal, @mattgnyc
Questions?? I will think of all my questions and ask them. Thank you
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