Anyone had Keytruda for non-Hodgkin lymphoma?

Posted by nodunk @nodunk, Aug 27 8:11am

Has anyone had Keytruda or any of the checkpoint inhibitors? I am 5 years in from last treatment for non Hodgkin lymphoma and am experiencing worsening peripheral neuropathy.

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Hi @nodunk, the FDA expanded the approval for Keytuda (pembrolizumab) to include adults with relapsed or refractory classical hodgkin lymphoma (cHL) in 2020. It has been used to treat other cancers, such as melanoma, bladder cancer, lung cancer, colorectal cancer, B-cell lymphoma and more.

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Is Keytruda working for you? Have you discussed the worsening neuropathy with your team? Is it expected to improve once treatment ends?


Treatment ended 5 years ago. CIPN continues to worsen. Believe the drug obviously is great for dealing with cancer cells but in my case put my immune system out of whack where healthy cells are being attacked with pain being the result. Can’t find anyone else who has experienced a similar fate.

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