Can anyone suggest any other medication besides Keppra for seizures?

Thank you, it helps to hear that.

Mine were different. I passed out. So doc put me on 1000 mg a day. Serbs like a lot. I reduced it myself to 500. Have t had an episode on 14 years . Good luck to you

My heart goes out....I've experienced the same feeling of being a street addict when I try to explain the need for my seizure meds and when I need to take them~!! Now, if I know I'm going to the hospital...I've been known to take a days supply to cover myself for 24 hours. I'm 82 now..seizure free....but want to stay that way...and as you get to be my age you aren't concerned with the hospital's reaction~!!😕💞

Hi
Since Keppra has been developed there has been atleast 3 other epilepsy drugs developed so I would go back and see your neuroligist so that he can work out what drug would suit you best
Epilepsy treatments have come a long way since the 50's

You are absolutely right!! Especially some of the testing, it bordered on barbaric.
What happened in my case was that the mega-doses of Prednisone that I had to take when I was diagnosed with GCA in 2019--changed my treatment. I was on 125mg per day in an attempt to save the sight in my right eye, I lost the left overnight. After 45 years, seizure free and on a maintenance dose, I started having auras--I remember that feeling so well.
I was living alone at the time and I called my neurologist and said very firmly..."I cannot have a seizure because I know my family will be really concerned about my well-being. Please do something!"
I wanted to stay independent..I was almost 79.
I was given IV Keppra and dropped to 80mg of methylprednisolone. I was in the hospital for a few days to be monitored.
All ended well, no seizure, and I'm quite thankful for my right eye....I'm fine and have full vision there now. I just saw my neurologist today, and I just don't want to rock a boat that is sailing smoothly at age 82. He agreed. There are some other meds I've gathered I'm looking forward to junking.😕
I think it is wonderful how far treatments have come and you gave me some great advice. Thanks!💞

Hi grammy
whatever you do don't ever go onto Sabril as it's a very nasty drug. Most oeople get blurred vision on it and some got memory loss - I ended up with memory loss and demanded to be taken off it, My new neuro put me on Keppra and I feel great. I have nocturnal seizure so I need to get a seizure watch to wear to bed as my seizures are deffinately changing I don't even wake up with a tension headache anymore. I'm 65 and am very contented these days it just feels weird now that my life doesn't revolve around coping with these awful seizures.
Glad things are working out for you
Sal

@salpal So good to hear that!! Keppra has worked just fine for me too. My first seizure was as a 15-year-old in 1955. The trial and error period went on for almost two years, and lots of absence seizures before I had control. Then I only had a few here and there until 45 years ago. It sounds like your under good care. I did too at Children's Hospital in Boston, Dr. Caesar Lombroso!
He was brilliant and since his daughter had seizures his motivation was so sincere and he was so committed to every patient.
You said, "feels weird now that my life doesn't revolve around coping with these awful seizures." Weird can be a good thing, right?💞

Ask you doctor about:
ONFI
Lamictal, and
X-COPRI

Have yo asked about X-Copri ? It seems to work fairly well for me.

Hi @meilin982
Thank you for the suggestion. My doctor (epileptologist) does not think it is worth trying more AEDs, after having tried 6 different AEDs and having a very bad experience. It is clear to him that my epilepsy is refractory and that I am very sensitive to those medications (AEDs). I have adapted myself well to CBD from medical cannabis and a gluten-free diet, having very light seizures nowadays (about 2 focal seizures a month). I am smiling again to life. But your suggestion might be useful for others. Thanks for sharing!!! 🙂
Santosha