Anyone else have cervical dystonia?

Posted by kevinkelley @kevinkelley, Nov 2, 2015

@Kaia Hi Kaja, this is Kevin Kelley... just read your post on Mayo Clinic.. I too have and do experience Very Similar symptoms as the ones you described of your daughters...can honestly say, I have tried a very great # of various seizure medicines; I had the VNS and with that upon its battery cycle and the replacement of, experienced an occurence of which I gladly would share; said with zero exaggeration, I experience seizures if not daily than def. bi-wkly and with that those the dystonia movements as well... should there be anything in my history of those that you would like to know, don't hesitate to ask, I will gladly share... should you find anything that is very helpful I would be thankful of you to share thanks, Kevin Kelley

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@shenaaz

I HAVE CERVICAL DYSTONIA. THE PAIN IS UNBEARABLE. IS THERE ANYONE OUT THERE WITH THE SAME SITUATION.

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Me!!!
Have you found anything to help. I live my life in pain 24/7

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