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Cervical dystonia (Spasmodic Torticollis): Looking for support

Spine Health | Last Active: Jan 13, 2022 | Replies (28)
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@billdemon

Not sure yet I see my neurologist next week and a new doctor in February (which specializes in movement disorders) where I live it very hard to find dystonia doctors especially ones that take my insurance the other problem is most doctors are usually booking months out. Well I figured in the mean time I could see if anyone else has similar issues, that was the thought anyway.

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Replies to "Not sure yet I see my neurologist next week and a new doctor in February (which..."
Teresa, Volunteer Mentor | @hopeful33250 | Nov 20, 2020

Hello @billdemon,

I just noticed your post about cervical dystonia. I found some information on the Mayo Clinic's website. Here is a link to that information, https://www.mayoclinic.org/diseases-conditions/cervical-dystonia/symptoms-causes/syc-20354123. I would encourage you to read it and see what similarities you find to your symptoms.

Have any medications been helpful for this condition?

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Teresa, Volunteer Mentor | @hopeful33250 | Nov 21, 2020

Hello @billdemon

I would like to invite some other members who have posted about this disorder so that they might share with you their experiences. I would like to invite, @helenfrances @wolfbauer and @jlfisher56. I hope that one of them is able to share some helpful information that you can use when you see the neurologist in February.

In addition, here is a link that provides some great guidance for meeting with a new doctor, https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/. I would encourage you to read the information so that when you go to the appointment you can feel educated and somewhat in charge of the time you spend with the new specialist.

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