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Anyone living with Essential Thrombocythemia with JAK2?

Posted by lindamarie63 @lindamarie63, Dec 3, 2024

Has anyone been living with,ET, jac2 mutation

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mjervis | @mjervis | 2 days ago
In reply to @sanlee7 "@sstackho I was diagnosed 2 years ago and would not take the Hydrox. Until 2 months..." + (show)
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@sstackho I was diagnosed 2 years ago and would not take the Hydrox. Until 2 months ago my count went up to over 1 million! After 2 months of the med I am down to the 500’s. The meds make me very tired which I hate cause I am very active. I will turn 80 in December. Also I now have to be on iron meds due to this disease.

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@sanlee7
I take 1000 each night after my evening meal. I don't wait till bedtime as I always drink a good bit of water with them.

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