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Anyone living with Essential Thrombocythemia with JAK2?

Posted by lindamarie63 @lindamarie63, Dec 3, 2024

Has anyone been living with,ET, jac2 mutation

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mdramsey48 | @mdramsey48 | 3 days ago
In reply to @garyintlv "@mdramsey48 The only side effects I have on Besremi are a dry mouth (I drink a..." + (show)
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@mdramsey48
The only side effects I have on Besremi are a dry mouth (I drink a lot of water and use Biotene) and it sometimes affects my sleep: either I have trouble falling asleep or wake up and can't go back to sleep. I don't stress because I know it may last a few days but then settles down again. I much prefer coping with that than HU.
Good luck!

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@garyintlv Thank you for that. What were you side effects on HU? I am getting really frustrated and losing hope for ever getting past this fatigue. Glad you are doing well

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