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Profile picture for Sandy Morris @esperanzam

sandym@arn.net
I am having increasing trouble with my feet. I have read that it is a problem with ET. I have been to two podiatrist and honestly, they address one problem but they don't seem to know much about Essential Thrombocythemia. I have had it for 11 1/2 years and am on 1000 mg of Hydroxyurea daily. I am about as well controlled as I am going to get at around 500,000 platelets.
I have had two hip replacements, L4-5 laminectomy with fusion, and a host of other problems. Is there anyone out there suffering from foot burning sensations, numbness, tingling, pain in the feet? Just curious. I cancelled my appointment with the orthopedic doctor when I realized that my problems is one of the symptoms of ET and few of the doctors I have been to know little about ET, except for my oncologist.
Thanks
EstrellitaMorris

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Replies to "sandym@arn.net I am having increasing trouble with my feet. I have read that it is a..."

@esperanzam Hi, I had burning feet and hands and sometimes it felt like my blood was burning. I have ET and Jak2 mutation, taking HU and mini aspirin daily. I found once I started taking Hemp Oil daily I had no burning sensations, aches or pains. I checked with my doctor first before taking hemp oil. Good luck and I hope you find something that relieves your pain.