I'm wondering with ET Jak2, I take HU with baby aspirin. But doctor always said no NAIDS, but recently he said I could take occasionally. Just wonder what guidance you've have with over-the-counter pain relievers. My Dr always said tylenol, but somehow tylenol doesn't work for me. Until my diagnosis I always took aspirin.
I'll tell you what works for me . . . it's always best to consult with your own oncologist to learn what is best for you.
For me, annual vaccinations against flu and Covid are a priority, as most of my neighbors in this remote, mountainous part of Virginia are vaccine-skeptics. Also factoring in is my age (71 years).
Those of us who are treating our ET with HU (hydroxyurea) should only have non-live vaccines, as HU does lower our immune response. As far as I know, all Covid vaccines are non-live. Some forms of flu inoculations -- such as the nasal spray -- are live and must be avoided.
Have you been in the habit of getting any annual vaccines, birgitr?
@janemc Thank you so much for your valuable feedback, for sure I am going to ask my doctor about her opinion regarding vaccines. Right now I haven’t gotten annual vaccines 😅
I'm wondering with ET Jak2, I take HU with baby aspirin. But doctor always said no NAIDS, but recently he said I could take occasionally. Just wonder what guidance you've have with over-the-counter pain relievers. My Dr always said tylenol, but somehow tylenol doesn't work for me. Until my diagnosis I always took aspirin.
As always, only our own doctors can say what's best for each of us.
Early on, my oncologist said an occasional naproxen was fine. Later, his Physician's Assistant -- who seems more knowledgeable about MPNs -- said Tylenol was better.
Why? Because our kidneys are already working overtime to clear our HU, and Tylenol is easier on the kidneys than naproxen.
Naproxen works better for me too, but I have switched to Tylenol as much as possible.
I was also advised to wait at least two hours after taking my daily aspirin to take any NSAID, to avoid interfering with aspirin's essential role in blood thinning.
For pain that won't quit, I occasionally take melixocam, which is even easier on the kidneys than Tylenol. This was prescribed by my PCP's Physician Assistant, who's also fully aware of my MPN.
Taking care of our kidneys is especially important for those of us with MPNs.
This is why nohrt4me always reminds us -- drink lots of water!!!
@kat260 The dosage is gonna depend on the next bloodwork results. There are no strict guidelines because the meds are individually working. Next Friday I will inject the drug by myself, I will keep you posted how it has worked.
As always, only our own doctors can say what's best for each of us.
Early on, my oncologist said an occasional naproxen was fine. Later, his Physician's Assistant -- who seems more knowledgeable about MPNs -- said Tylenol was better.
Why? Because our kidneys are already working overtime to clear our HU, and Tylenol is easier on the kidneys than naproxen.
Naproxen works better for me too, but I have switched to Tylenol as much as possible.
I was also advised to wait at least two hours after taking my daily aspirin to take any NSAID, to avoid interfering with aspirin's essential role in blood thinning.
For pain that won't quit, I occasionally take melixocam, which is even easier on the kidneys than Tylenol. This was prescribed by my PCP's Physician Assistant, who's also fully aware of my MPN.
Taking care of our kidneys is especially important for those of us with MPNs.
This is why nohrt4me always reminds us -- drink lots of water!!!
@janemc I was never advised one way or tge other about taking nsaids while on hydroxyurea for my ET with Jak2. There's so much we are not told when we are diagnosed. Fir instance, I only learned on this blog that I should drink lots of water. So thankful for all the info that is being shared.
@kat260 The dosage is gonna depend on the next bloodwork results. There are no strict guidelines because the meds are individually working. Next Friday I will inject the drug by myself, I will keep you posted how it has worked.
@birgitr Ok, thanks. I see my Haematologist on Thursday and will be asking to start Peg. Will be interesting to see what he says as I've only been on Asprin so far & my platelets are around 1000. I hear it takes quite a while for them to go down on Peg. Good luck with your self injecting.
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About vaccinations, my oncologist said definitely keep up to date on vaccines. Pneumonia (2 types), covid, flu, shingles, RSV,
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1 ReactionI'm wondering with ET Jak2, I take HU with baby aspirin. But doctor always said no NAIDS, but recently he said I could take occasionally. Just wonder what guidance you've have with over-the-counter pain relievers. My Dr always said tylenol, but somehow tylenol doesn't work for me. Until my diagnosis I always took aspirin.
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1 Reaction@janemc Thank you so much for your valuable feedback, for sure I am going to ask my doctor about her opinion regarding vaccines. Right now I haven’t gotten annual vaccines 😅
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1 Reaction@birgitr 👍 Sorry, couple more questions. Are you making your way up to a higher dose? Going ok with the self injecting?
@1995victoria
As always, only our own doctors can say what's best for each of us.
Early on, my oncologist said an occasional naproxen was fine. Later, his Physician's Assistant -- who seems more knowledgeable about MPNs -- said Tylenol was better.
Why? Because our kidneys are already working overtime to clear our HU, and Tylenol is easier on the kidneys than naproxen.
Naproxen works better for me too, but I have switched to Tylenol as much as possible.
I was also advised to wait at least two hours after taking my daily aspirin to take any NSAID, to avoid interfering with aspirin's essential role in blood thinning.
For pain that won't quit, I occasionally take melixocam, which is even easier on the kidneys than Tylenol. This was prescribed by my PCP's Physician Assistant, who's also fully aware of my MPN.
Taking care of our kidneys is especially important for those of us with MPNs.
This is why nohrt4me always reminds us -- drink lots of water!!!
-
Like -
Helpful -
Hug
1 Reaction@kat260 The dosage is gonna depend on the next bloodwork results. There are no strict guidelines because the meds are individually working. Next Friday I will inject the drug by myself, I will keep you posted how it has worked.
@janemc I was never advised one way or tge other about taking nsaids while on hydroxyurea for my ET with Jak2. There's so much we are not told when we are diagnosed. Fir instance, I only learned on this blog that I should drink lots of water. So thankful for all the info that is being shared.
@birgitr Ok, thanks. I see my Haematologist on Thursday and will be asking to start Peg. Will be interesting to see what he says as I've only been on Asprin so far & my platelets are around 1000. I hear it takes quite a while for them to go down on Peg. Good luck with your self injecting.