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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (618)Comment receiving replies
As always, only our own doctors can say what's best for each of us.
Early on, my oncologist said an occasional naproxen was fine. Later, his Physician's Assistant -- who seems more knowledgeable about MPNs -- said Tylenol was better.
Why? Because our kidneys are already working overtime to clear our HU, and Tylenol is easier on the kidneys than naproxen.
Naproxen works better for me too, but I have switched to Tylenol as much as possible.
I was also advised to wait at least two hours after taking my daily aspirin to take any NSAID, to avoid interfering with aspirin's essential role in blood thinning.
For pain that won't quit, I occasionally take melixocam, which is even easier on the kidneys than Tylenol. This was prescribed by my PCP's Physician Assistant, who's also fully aware of my MPN.
Taking care of our kidneys is especially important for those of us with MPNs.
This is why nohrt4me always reminds us -- drink lots of water!!!
Replies to "@1995victoria As always, only our own doctors can say what's best for each of us. Early..."
@janemc
After I had a mild heartattack 2023 I was prescribed Ticagrelor (commonly known by the brand name Brilinta) and baby aspirin for a year, after a year aspirin was dropped and just Plavix (clopidogrel) continued. At the time I was told not to take any ibuprofen or other NSAID, just Tylenol. I was also told not to take Omega-3 supplements. I have not dared to take any of those since. Maybe I should ask my PCP or cardiologist again.
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@janemc I was never advised one way or tge other about taking nsaids while on hydroxyurea for my ET with Jak2. There's so much we are not told when we are diagnosed. Fir instance, I only learned on this blog that I should drink lots of water. So thankful for all the info that is being shared.