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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (618)Comment receiving replies
I'm wondering with ET Jak2, I take HU with baby aspirin. But doctor always said no NAIDS, but recently he said I could take occasionally. Just wonder what guidance you've have with over-the-counter pain relievers. My Dr always said tylenol, but somehow tylenol doesn't work for me. Until my diagnosis I always took aspirin.
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@1995victoria
As always, only our own doctors can say what's best for each of us.
Early on, my oncologist said an occasional naproxen was fine. Later, his Physician's Assistant -- who seems more knowledgeable about MPNs -- said Tylenol was better.
Why? Because our kidneys are already working overtime to clear our HU, and Tylenol is easier on the kidneys than naproxen.
Naproxen works better for me too, but I have switched to Tylenol as much as possible.
I was also advised to wait at least two hours after taking my daily aspirin to take any NSAID, to avoid interfering with aspirin's essential role in blood thinning.
For pain that won't quit, I occasionally take melixocam, which is even easier on the kidneys than Tylenol. This was prescribed by my PCP's Physician Assistant, who's also fully aware of my MPN.
Taking care of our kidneys is especially important for those of us with MPNs.
This is why nohrt4me always reminds us -- drink lots of water!!!