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amyintucson
@amyintucson

Posts: 33
Joined: Feb 07, 2018

It's not all about the MELD Score

Posted by @amyintucson, May 19, 2018

There are lots of threads out there with questions and comments about MELD Scores. I just had my 1year/3 month pre-liver transplant review and my MELD is a 10. The doctors at Mayo/Phoenix emphasized that the MELD isn't everything as some people are sicker than their scores indicate. They have me on the "active" list and am in the discussion at their weekly team meetings. I have venous congestion that is of major concern because if it continues to grow it causes other operative problems. I have had esophageal varices banded – 6-8 times (no bleeding so far) – but that has precluded using a blood thinner to allow the body to dissolve the clot on its own. If my next upper endoscopy – in the next 2 weeks here in Tucson – shows no new varices we may try the blood thinner even with my low platelet counts. Though it increases the risk of bleeding, with weekly monitoring its a risk/reward decision. The bloid thinner will likely raise my INR and temporarily raise my MELD, it's worth a shot if the body breaks up the clot.

REPLY

@contentandwell

@gaylea1 do you have friends close enough that maybe each could get you out of the house once a week or so? I am sure that would help. I too would get very down if stuck in the house all day.
JK

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@contentandwell I do go to physio every Wed at the transplant clinic but it is exhausting. I find trying to hold conversation so hard these days. I have a chest cold right now and am hoping it won't affect me if I get my call.

@contentandwell

@rosemarya @gaylea1 Rosemary, you are absolutely right. Too often in the past I did nothing for a person who was going through some health problems because I didn’t want to interfere. I am working on this.
JK

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@contentandwell I have to learn to ask for help and to take it when offered. I've always been so independent.

@gaylea1

@contentandwell I have to learn to ask for help and to take it when offered. I've always been so independent.

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@gaylea1 I hope if you do get the call that the cold will not interfere.
I too find it difficult to accept help, even from my husband. I think if you have lived independently that is often true. I was almost 28 when I got married. Prior to that I was a very independent single.
JK

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