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It's not all about the MELD Score

Transplants | Last Active: Nov 14, 2023 | Replies (217)

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@gaylea1

@rosemary I have to admit I am feeling so lost. I've been sick for so long I almost feel like giving up. I feel like my call will never come.

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Replies to "@rosemary I have to admit I am feeling so lost. I've been sick for so long..."

I used to have the same thing. But now either because of good phlebotomists, or being healthy that is part of my past life! I also have benefit of not having limited liquid requirement, and so I am careful that I am hydrated and that is (I am told) supposed to plump up those veins.
I send this to provide some Hope! It will get better.
Hugs

gaylea, I understand. I really do. I have been in the situation of living hour by hour. I did not know if I would make it until an organ became available for me. Every night I used to be disappointed that I did not get the call, and every morning I prayed, "Let this be the day." and always, "Thy will be done'" That was my focus.
I also felt a sense of peace by praying for my potential donor and his/her family every day.
Psalm 23 was and still is my strength. The Lord is "our" Shepherd. I send you my love and my prayers, dear friend.
Rosemary

@gaylea1
Hang in there....you are in the plan....things will develop whether you worry or you don't. Can't imagine what those last days waiting are like...I sense you are strong and organized so try to find something totally different to occupy your time...needlepoint scrapbooking or just reading a book to distract you. Feel free to return this advice when its my turn...lol
Think good thoughts..you have many people surrounding you that you hardly know that care.
Godspeed this transplant.

@gaylea1 don’t ever give up. Sure, there are days when you feel like it, but you have to hope for the future. I did extremely well until sometime in August 2016, and then things started going downhill fast. I gained about 35 pounds of water weight, and I felt very poorly. I was told i would not get a transplant until at least November and felt despair that I couldn’t endure feeling that bad for that long. My husband didn’t tell me until afterward that he thought that he was going to lose me, and my sister did also. Then on September 22 I got the miraculous call so much sooner than anticipated. My transplant occurred at @ 12:30 A.M. on September 23. It still seems surreal to me. One thing that amazes is how calm both my husband and I were on the 1.5 hour drive!
Your time will come, probably very soon, try to think positively.
JK

@gaylea1 I think all of us on here empathize with the waiting.There are definitely days I can't get out of my own way. I had weaned off the low dose Lexapro I was taking last year, but I found I needed it to help get by. I've been dealing with Sarcoidosis and its side effects for 10 years and I try to do what I can do. My passion is kiln-formed glass art - and until about 2 years ago, I would go the local studio 2-3 times a week. Now, with my own kiln at home, I still can't get myself motivated. Knowing that there are others in worse shape than I am is what keeps me feeling grateful.