Is there anyone dealing with Leaky Gut Syndrome?

Posted by storie @storie, Feb 9, 2019

Is there anyone dealing with Leaky Gut Syndrome? I would like to talk to you.

Interested in more discussions like this? Go to the Digestive Health Support Group.

@bonnieh218

@gidalsy I’ve been a Mayo patient for years. On your very first visit they will start you out with a doctor in general medicine. That doctor from that point will decide on whatever specialists you may need to see and get someone to help you make those appointments.
Best of luck to you!

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Thank you!

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@gidalsy

Thank you! She visited a neurologist, cardiologist and endocrinologist but only checked for sugar and thyroid, not other hormones even I asked for cortisol and that kind of tests he said is not needed.Neurologist said that her tests showed no epilepsy so is vasovagal syncope. What I missed to check with an immunologist.
Would you recommend to get an appointment with a specific doctor in Mayo Clinic? Not sure how that works.We are willing to drive and get her re-evaluated.

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Hi @gidalsy,

If you’d like to make an appointment with Mayo Clinic, please call one of the appointment offices – you can also request an appointment online. The contact information for all 3 Mayo Clinic locations (Minnesota, Arizona, Florida) can be found here: http://mayocl.in/1mtmR63
The Clinic’s representatives/schedulers will ask questions to help direct you to the best specialist, either at Mayo or closer to home.

In the meantime, I’d sincerely encourage you to view these Connect conversations about leaky gut:
https://connect.mayoclinic.org/discussion/leaky-gut-constipation-and-gluten-free/
https://connect.mayoclinic.org/discussion/leaky-gut/?pg=1#comment-89132

You might also be interested in viewing these talks on the Gastroenterology & GI Surgery Page (https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/) on Connect:
– The ‘Pros’ of Probiotics: Dr. Joseph Murray on Mayo Clinic Radio https://connect.mayoclinic.org/newsfeed-post/the-pros-of-probiotics-dr-joseph-murray-on-mayo-clinic-radio/
– Is Larazotide Acetate the Answer to Leaky Gut? https://connect.mayoclinic.org/newsfeed-post/is-larazotide-acetate-the-answer-to-leaky-gut-1/

I’m tagging @alina151 @jacquelinek1956 @clemlaa @jigglejaws94 @nanceedeefeperi @alfalfa @blueberre @davejscott @gardeningjunkie @redhead63 @storie who have written about leaky gut, and I’m confident they will join in to share their insights.

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@gidalsy

Forgot to say that she has been Looking for dietas for Cándida and leaky guts. She noticed some improvement with Cándida symptoms within a week. One night she had spicy wings which didn’t seem to affect her stomach but witching 2 hours the symptoms came back. She believes that anything hurts her gut will trigger the Cándida but even worse that night she has symptoms again of vasovagal (not fainted) after almost a week doing good on that. I see her gut and vasovagal episodes as well as Cándida are related. Not sure but i wish I find help to test that somehow.

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An anti-inflammation diet I follow has successfully controlled my yeast and for the first time in years it eliminated my need for a strong corticosteroid shot to control internal eczema symptoms. This diet isn't easy, but if one is miserable enough we are motivated. Also today, I no longer crave sugar. My mouth no longer waters looking at the candy bowl or watching others eat dessert. I still bake desserts for my family and am not tempted because I fear a return of symptoms. I have followed this diet for 1 year this month. I plan to stick with this diet for life.
A female gynecologist recommended looking into diet modification. I read several books that were so complicated I was overwhelmed and then I cam across The Yeast Connection Handbook by William Crook, MD. This country doctor was a pioneer in diet as a means to control yeast back in the 80's and ridiculed by the medical profession. He believed yeast whose waste passes though weak intestinal lining (leaky gut) gets into our bloodstream raising our histamine levels thus raising inflammation. One must stop feeding the yeast, this doesn't mean stop eating but changing what we eat. I have never been overweight and have had a well balanced diet all my life, with occasional desserts. I never drank sodas, but used jam, honey and sugar in many recipes. Simple hand draw illustrations helped me understand how demanding yeast is. How yeast controls our brain. I began this diet to lower my histamines because I have eczema as well as female yeast issues. The 2 month detox is brutal and since newer studies find it can take up to 3 months to starve the yeast residing in our intestines I went with that because after 6 weeks I began noticing improvement. This yeast must starve itself to death. It sends messages to your brain demanding sugar. Craving sugar! Yeast loves sugar and carbs so for the detox period no sugar- natural or processed period! After that zero processed sugar for life and small servings of natural sugar as in fruit. I gave up alcohol years ago and giving up sugar was much more difficult. Tell yourself this jingle I made up when your mouth is salivating for something sweet, "When will you learn, it's going to make you burn". I brainwashed myself, repeating this dozens of times a day to begin with. Relief is not immediate. Yeast is stubborn and strong and won't die without a fight. If your daughter is not a fighter she shouldn't even try. It's a personal choice and you can't do this for her, of course have the healthy food alternatives handy, but just like wishing a smoker or drug addict would quit, they have to want to. I bought big bags of carrots, as they are a sweet veggie.
The Dr. Crook book is still sold on Amazon with an updated addendum, this is the version I have, and the update includes certain herbals I take.

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@gardeningjunkie

An anti-inflammation diet I follow has successfully controlled my yeast and for the first time in years it eliminated my need for a strong corticosteroid shot to control internal eczema symptoms. This diet isn't easy, but if one is miserable enough we are motivated. Also today, I no longer crave sugar. My mouth no longer waters looking at the candy bowl or watching others eat dessert. I still bake desserts for my family and am not tempted because I fear a return of symptoms. I have followed this diet for 1 year this month. I plan to stick with this diet for life.
A female gynecologist recommended looking into diet modification. I read several books that were so complicated I was overwhelmed and then I cam across The Yeast Connection Handbook by William Crook, MD. This country doctor was a pioneer in diet as a means to control yeast back in the 80's and ridiculed by the medical profession. He believed yeast whose waste passes though weak intestinal lining (leaky gut) gets into our bloodstream raising our histamine levels thus raising inflammation. One must stop feeding the yeast, this doesn't mean stop eating but changing what we eat. I have never been overweight and have had a well balanced diet all my life, with occasional desserts. I never drank sodas, but used jam, honey and sugar in many recipes. Simple hand draw illustrations helped me understand how demanding yeast is. How yeast controls our brain. I began this diet to lower my histamines because I have eczema as well as female yeast issues. The 2 month detox is brutal and since newer studies find it can take up to 3 months to starve the yeast residing in our intestines I went with that because after 6 weeks I began noticing improvement. This yeast must starve itself to death. It sends messages to your brain demanding sugar. Craving sugar! Yeast loves sugar and carbs so for the detox period no sugar- natural or processed period! After that zero processed sugar for life and small servings of natural sugar as in fruit. I gave up alcohol years ago and giving up sugar was much more difficult. Tell yourself this jingle I made up when your mouth is salivating for something sweet, "When will you learn, it's going to make you burn". I brainwashed myself, repeating this dozens of times a day to begin with. Relief is not immediate. Yeast is stubborn and strong and won't die without a fight. If your daughter is not a fighter she shouldn't even try. It's a personal choice and you can't do this for her, of course have the healthy food alternatives handy, but just like wishing a smoker or drug addict would quit, they have to want to. I bought big bags of carrots, as they are a sweet veggie.
The Dr. Crook book is still sold on Amazon with an updated addendum, this is the version I have, and the update includes certain herbals I take.

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Thank you!! She started a diet two ago, similar to keto but no dairy and done other things she is doing. She already felt a bit better from the yeast but she is tired, frequent headaches I am still wirried about she having some other underlined condition we haven’t found. She will be making an appointment tomorrow with Mayo Clinic but for sure I will refer this book to her. She has been watching a doctor in you tube and following a “Cándida diet” almost like a keto diet with no dairy and chicken broth. Additional info will for sure help her. Thank you again for taking the time and share your experience, it helps a lot.

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@gidalsy

Thank you!! She started a diet two ago, similar to keto but no dairy and done other things she is doing. She already felt a bit better from the yeast but she is tired, frequent headaches I am still wirried about she having some other underlined condition we haven’t found. She will be making an appointment tomorrow with Mayo Clinic but for sure I will refer this book to her. She has been watching a doctor in you tube and following a “Cándida diet” almost like a keto diet with no dairy and chicken broth. Additional info will for sure help her. Thank you again for taking the time and share your experience, it helps a lot.

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2 weeks ago

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I have Leaky Gut Syndrome, because I have Microscopic Colitis, (MC). My symptoms are Brain Fog, chronic explosive diarrhea at times,muscular pain of the abdomen and fatigue. There is a good site for this if you think you have MC or LC. Seems we all low in Magnesium and Vitamin D. We try to control this monster disease by diet. The less drugs you take the better!

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Many people during detox experience headache and sugar withdrawal can have this effect. The heavy metal detox using cilantro has this effect on many. I have never experienced headache as a side effect of a detox. I do drink lots of water which is important to as it flushes your body. I have also learned it is often more than one thing for me when I have issues which makes diagnosis confusing. If a doctor believes he has the answer he stops looking for additional causes.

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@kanaazpereira

Hi @gidalsy,

If you’d like to make an appointment with Mayo Clinic, please call one of the appointment offices – you can also request an appointment online. The contact information for all 3 Mayo Clinic locations (Minnesota, Arizona, Florida) can be found here: http://mayocl.in/1mtmR63
The Clinic’s representatives/schedulers will ask questions to help direct you to the best specialist, either at Mayo or closer to home.

In the meantime, I’d sincerely encourage you to view these Connect conversations about leaky gut:
https://connect.mayoclinic.org/discussion/leaky-gut-constipation-and-gluten-free/
https://connect.mayoclinic.org/discussion/leaky-gut/?pg=1#comment-89132

You might also be interested in viewing these talks on the Gastroenterology & GI Surgery Page (https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/) on Connect:
– The ‘Pros’ of Probiotics: Dr. Joseph Murray on Mayo Clinic Radio https://connect.mayoclinic.org/newsfeed-post/the-pros-of-probiotics-dr-joseph-murray-on-mayo-clinic-radio/
– Is Larazotide Acetate the Answer to Leaky Gut? https://connect.mayoclinic.org/newsfeed-post/is-larazotide-acetate-the-answer-to-leaky-gut-1/

I’m tagging @alina151 @jacquelinek1956 @clemlaa @jigglejaws94 @nanceedeefeperi @alfalfa @blueberre @davejscott @gardeningjunkie @redhead63 @storie who have written about leaky gut, and I’m confident they will join in to share their insights.

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I am in Canada and asking to have an MRI done privately. However I have an ileostomy and am worried about metal in sutures. Also the contrast agent is concerning me. I have been suffering from IBS after taking antibiotics last year, and have discomfort under my ribs. Am being traumatized by pancreatic cancer in the news. Do not know if the mri will calm me down or just add to my ibs issue.
Kathy

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@oakbourne

I have Leaky Gut Syndrome, because I have Microscopic Colitis, (MC). My symptoms are Brain Fog, chronic explosive diarrhea at times,muscular pain of the abdomen and fatigue. There is a good site for this if you think you have MC or LC. Seems we all low in Magnesium and Vitamin D. We try to control this monster disease by diet. The less drugs you take the better!

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Hi. In getting diagnosed was SIBO considered too? The symptoms from both can be confused.

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@oakbourne

I have Leaky Gut Syndrome, because I have Microscopic Colitis, (MC). My symptoms are Brain Fog, chronic explosive diarrhea at times,muscular pain of the abdomen and fatigue. There is a good site for this if you think you have MC or LC. Seems we all low in Magnesium and Vitamin D. We try to control this monster disease by diet. The less drugs you take the better!

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Oakbourbe, do you have the address to that site??

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