Is there anyone dealing with Leaky Gut Syndrome?

Posted by storie @storie, Feb 9, 2019

Is there anyone dealing with Leaky Gut Syndrome? I would like to talk to you.

Interested in more discussions like this? Go to the Digestive Health Support Group.

@amandaa

@mbarbed68 Hi and welcome to Mayo Clinic Connect. You will see that I moved your post to a long going discussion about leaky gut. This will allow you to connect with members who have had similar troubles like @rambler, @gardeningjunkie, and @fighter
What does your diet look like right now and what foods cause you to have those symptoms?

Jump to this post

I’m gluten-free, dairy free and I’m starting to cut out other things. Certain chocolates cause it, coffee does it, gluten does it. Sometimes it happens when I haven’t eaten but have a lot of stomach acid. Sometimes I don’t even know what caused it but when I get lax about my supplements and my diet and decide to cheat, it’s almost a guarantee.

REPLY
@amandaa

@mbarbed68 Hi and welcome to Mayo Clinic Connect. You will see that I moved your post to a long going discussion about leaky gut. This will allow you to connect with members who have had similar troubles like @rambler, @gardeningjunkie, and @fighter
What does your diet look like right now and what foods cause you to have those symptoms?

Jump to this post

Thank you btw!

REPLY
@mbarbed68

I developed an autoimmune disorder about 4 years ago and ended up in the hospital for 4 months almost paralyzed. It’s been a long battle but I’m at least back to walking (with a walker) and able to care for myself.

I started having digestive issues and an itching band around my midriff about 2 years ago as well as muscle problems in stomach area and it just kept getting worse. After a ton of tests, they don’t really know why. I’ve researched endlessly and leaky gut is the only thing that makes sense with all my symptoms. You can almost see the effects in real time when I eat certain foods or don’t take supplements and follow program. About 30-45 minutes after eating or drinking certain things my muscles start to spasm, cramp (deep cramps), and my nerves go crazy. My hands draw up like claws and sometimes my leg muscles lock so hard I can’t bend them or move for a few minutes.

The problem is that so far I can’t get a doctor to even acknowledge that leaky gut is a thing much less run tests or help me with it. Gastro told me “no, that’s not possible “, did colonoscopy and gave me acid reducers. How do you find help for this?

Jump to this post

Sugar raises internal inflamation. I follow The Yeast Connection Handbook, by William Crooke, Md. It's tied to leaky gut and the yeast which resides in our gut which puts out waste transferring throught the lthinning gut linings and into our bloodstream. I semi follow the maintanence plan, basically all I eliminate totally is processed sugar and I eat gluten in moderation. The hard part is the 2-3 month detox to starve the yeast colonies in your body . During that period zero sugar, processed or natural and zero carbs. This detox worked for me, the internal nervie sensations stopped and that was 3 years ago. It's a quick and simple read based on what yeast is doing to our bodies. Sugar, among other foods feed yeast.
I don't have muscle spasm or deep cramps, however nerves all over my body went crazy for years: stinging, zapping and itching. A doctor will look at you but can't "see" how you are feeling. These sensations were driving me insane, sleep was fitful at best and I was sleep deprived as the sensations were severe.
Intresting that you mentioned an itching band around your midriff. You don't mention a rash, but I also have a form of eczema, Grover's disease which targets the front and back torso area, for me especially around the midriff front and back.
Arthritis can make your hands draw up like claws, arthritus is inflamation in the joints. Leaky gut raises inflamation in the body. Eczema is also an inflamatory disease.
I haven't had food testing for allergies, have you looked into that?

REPLY
@gardeningjunkie

Sugar raises internal inflamation. I follow The Yeast Connection Handbook, by William Crooke, Md. It's tied to leaky gut and the yeast which resides in our gut which puts out waste transferring throught the lthinning gut linings and into our bloodstream. I semi follow the maintanence plan, basically all I eliminate totally is processed sugar and I eat gluten in moderation. The hard part is the 2-3 month detox to starve the yeast colonies in your body . During that period zero sugar, processed or natural and zero carbs. This detox worked for me, the internal nervie sensations stopped and that was 3 years ago. It's a quick and simple read based on what yeast is doing to our bodies. Sugar, among other foods feed yeast.
I don't have muscle spasm or deep cramps, however nerves all over my body went crazy for years: stinging, zapping and itching. A doctor will look at you but can't "see" how you are feeling. These sensations were driving me insane, sleep was fitful at best and I was sleep deprived as the sensations were severe.
Intresting that you mentioned an itching band around your midriff. You don't mention a rash, but I also have a form of eczema, Grover's disease which targets the front and back torso area, for me especially around the midriff front and back.
Arthritis can make your hands draw up like claws, arthritus is inflamation in the joints. Leaky gut raises inflamation in the body. Eczema is also an inflamatory disease.
I haven't had food testing for allergies, have you looked into that?

Jump to this post

It’s hard to explain because most of the time my hands are normal and no cramps if I’m careful with my diet and take supplements but if I don’t and then I eat an offending food, it’s almost like an allergic reaction; I have the cramps and nerves going crazy so I don’t feel like it’s arthritis. I have been checked for common food allergies and none.

REPLY
@mbarbed68

I developed an autoimmune disorder about 4 years ago and ended up in the hospital for 4 months almost paralyzed. It’s been a long battle but I’m at least back to walking (with a walker) and able to care for myself.

I started having digestive issues and an itching band around my midriff about 2 years ago as well as muscle problems in stomach area and it just kept getting worse. After a ton of tests, they don’t really know why. I’ve researched endlessly and leaky gut is the only thing that makes sense with all my symptoms. You can almost see the effects in real time when I eat certain foods or don’t take supplements and follow program. About 30-45 minutes after eating or drinking certain things my muscles start to spasm, cramp (deep cramps), and my nerves go crazy. My hands draw up like claws and sometimes my leg muscles lock so hard I can’t bend them or move for a few minutes.

The problem is that so far I can’t get a doctor to even acknowledge that leaky gut is a thing much less run tests or help me with it. Gastro told me “no, that’s not possible “, did colonoscopy and gave me acid reducers. How do you find help for this?

Jump to this post

When you search, use "intestinal permeability" instead of leaky gut syndrome.

REPLY

Dysbosis, leaky gut, IBS, hydrogen dominant SIBO
2 years , 7 GI drs , every test , every RX , hypnotheraphy gut related, peppermint pills, IBGuard, all tests neg except SIBO
Xifian 550 mg TID .. did nothing
Now GI wants to try augmentin rx which can be very hard on stomach
Symptoms feeling horrible for 2 years minus maybe 3 days ..weight loss , extreme fatique & body aches, headaches, body aches
Thank you for anyones experience .
Trying not to go back on antidepressants used for GI in low doses side effects & getting off them is horrible !! Thank you!

REPLY

<p>Is there such a thing as a ‘leaky gut?’</p><p>Can high fiber grains, tomato skins, etc create a so called leaky gut?</p>

REPLY
@redfinch

<p>Is there such a thing as a ‘leaky gut?’</p><p>Can high fiber grains, tomato skins, etc create a so called leaky gut?</p>

Jump to this post

@redfinch, I think you might appreciate joining this discussion to connect with others talking about leaky gut.
- Is there anyone dealing with Leaky Gut Syndrome?: https://connect.mayoclinic.org/discussion/is-there-anyone-dealing-with-leaky-gut-syndrome/

REPLY

My friend who visits . Yes she does and deals with it. She visits regularly

REPLY
Please sign in or register to post a reply.