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Worth visiting Mayo Clinic for evaluation of idiopathic neuropathy?

Posted by rybren @rybren, Apr 22 12:13pm

Anyone been to Mayo for IPN? Diagnosed 2021 post Covid vaccines with bilateral Idiopathic PN. Had EMG, ultra sounds, anti body testing, all types of diagnostic testing has been completed by PPC and Neurologist. On Gabapentin 3x a day 300 mg. Try everything local MD’s could muster. Now I am on the not much else we can do for you- good luck train. Love to hear of others made this leap. 5-7 day commitment in MN.
Thanks if you have input.

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jimminnesota | @jimminnesota | May 11 9:03am

I live 40 minutes from Mayo so I could do it easily, but have been told the same by other Neurologist's ...."sorry, can't do anything for you" Has anyone had a bunionectomy done and then stortly after the neuropathy starts? If you have...I would love to hear from you please!!

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sash | @sash | May 12 6:50am
In reply to @johnjp "@sash I'm so sorry to hear you did not find Mayo helpful. And you mentioned $$$$...." + (show)
Profile picture for johnjp @johnjp

@sash I'm so sorry to hear you did not find Mayo helpful. And you mentioned $$$$. Did you have to come out of pocket for a lot of money? Others are saying insurance (particularly Medicare) pays for it. Can you please tell us more about your experience with the costs?

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Most paid by ins. I’m just amazed, given the years (10+) since at MC and they still run everyone through the standard mill, offer the same meds and but much success in treating.

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newrochelle1131 | @newrochelle1131 | May 12 7:08am
In reply to @moorethrpy "Good luck getting into Mayo. I have tried all three locations with no success. Try to..." + (show)
Profile picture for moorethrpy @moorethrpy

Good luck getting into Mayo. I have tried all three locations with no success. Try to get in with a Neurologist affiliated with a teaching hospital. I finally got a Doc at Columbia U in NY.

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@moorethrpy Hi. I need a neurologist for neuropathy. Could I please have his/her name? I'm in southern Westchester, NY.
Thanks.

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tomcatrv4 | @tomcatrv4 | May 13 12:22pm

Mayo is superb, HOWEVER where you live is not important, Extremely difficult to get good Neurologist appointment, LONG WAIT

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