Worth visiting Mayo Clinic for evaluation of idiopathic neuropathy?

@terryjee Intravenous Immunoglobulin = IVIG. Often given on a regular schedule over a long period of time.

@allegheny
Ironic that you and I are almost the same age and having such a similar journey. I also believe that overcoming fears is important. I thought gabapentin is for pain so I am surprised to read that it is helping you.
Connect has been so helpful. It has been very difficult to accept that doctors have no answers and no effective treatment plan.

My experience at Mayo Clinic Neurology involved an extensive evaluation, including a detailed history and multiple tests across different departments—such as a painful EMG , hearing and heat studies, bloodwork, etc.

$$$$ later there was no clear cause identified for my idiopathic peripheral neuropathy. I was referred to a pain specialist who recommended starting gabapentin and gradually increasing the dose, which did not provide meaningful relief and the side effects outweighed any benefits. In short, I did not find the process helpful.”

@phyllisq Hi Phyllisq, yes the Gabapentin helps with the burning in the thighs. I know this because I decided to get off of it and the burning was intense, so I started it up again and burning again is minimal.My PT had me do curbs yesterday, at first I said no, cant do it. He had me hold his finger and I could do it. I told him that is all I need to be grounded. He insist I do it without holding his finger, I hesitated he said I am strong and I wont fall, he had faith in me, said if I was to fall there would be too much paper work for him. He gave me courage, if he knew I could do it, I should know that I could do it without holding on to something. Deep breath and I stepped down, easy peasy!! I turned and went back up, I did this 10 times!! I DID IT!! Then onto some mulch, no problem with that, because he believed in me and in turn I believed in myself.. I need to continue with just saying I can do it, and I can. My next challenge is sand! We live near the beach, I will try this with my daughter very soon! Exercise is key and squeezing glutes is a must! Keep trying and never say you cant, but do it safely! Best wishes to you!!

Good luck getting into Mayo. I have tried all three locations with no success. Try to get in with a Neurologist affiliated with a teaching hospital. I finally got a Doc at Columbia U in NY.

@moorethrpy got in no issue

@rybren You might be younger but great if you were able to get app't.

@phyllisq Hi Phyllisq, yes the Gabapentin helps with the burning in the thighs. I know this because I decided to get off of it and the burning was intense, so I started it up again and burning again is minimal.My PT had me do curbs yesterday, at first I said no, cant do it. He had me hold his finger and I could do it. I told him that is all I need to be grounded. He insist I do it without holding his finger, I hesitated he said I am strong and I wont fall, he had faith in me, said if I was to fall there would be too much paper work for him. He gave me courage, if he knew I could do it, I should know that I could do it without holding on to something. Deep breath and I stepped down, easy peasy!! I turned and went back up, I did this 10 times!! I DID IT!! Then onto some mulch, no problem with that, because he believed in me and in turn I believed in myself.. I need to continue with just saying I can do it, and I can. My next challenge is sand! We live near the beach, I will try this with my daughter very soon! Exercise is key and squeezing glutes is a must! Keep trying and never say you cant, but do it safely! Best wishes to you!!