Worth visiting Mayo Clinic for evaluation of idiopathic neuropathy?

I live 40 minutes from Mayo so I could do it easily, but have been told the same by other Neurologist's ...."sorry, can't do anything for you" Has anyone had a bunionectomy done and then stortly after the neuropathy starts? If you have...I would love to hear from you please!!

Most paid by ins. I’m just amazed, given the years (10+) since at MC and they still run everyone through the standard mill, offer the same meds and but much success in treating.

@moorethrpy Hi. I need a neurologist for neuropathy. Could I please have his/her name? I'm in southern Westchester, NY.
Thanks.

Mayo is superb, HOWEVER where you live is not important, Extremely difficult to get good Neurologist appointment, LONG WAIT

@tomcatrv4 You are correct. It’s a long wait. I’m a retired doc who trained at Mayo’s and I also have a friend who is still on staff and he basically got me in. I’ve been 3 times and the first time was crazy! The neurologist is a good guy and put me through the test ringer. Found out I have an IgM and IgG MGUS with anti-mag neuropathy. Saw a hematologist who is also a good guy and he ordered a bone marrow exam and PET exam. Bone marrow was negative but the PET showed 2 areas in my left collarbone, one of which was biopsied and they didn’t get any tissue. Hematologist told me to go home and get MRI of the area, which I have twice and the scan only showed degenerative changes and no tumor. So, I’ve just been waiting it out ever since. My biggest complaint is no follow-up! No messages from my care team. The neurologist said that Rituxan has a low chance of helping, whereas the hematologist said I could probably get some relief but it would take a long time (maybe up to a year). Not sure if I want my body to be in a state of immunosuppression that long and run the risk of getting infections and PML. It’s a crap shoot.

I have dealt with familial neuropathy (no diabetes) since early 2000s. I am 75 and now on Gapapentin (neuroton) at 1200mgx3daily. The max dose. Initially I fought drowsiness at lower dose, but body acclimated to med.
Also use either BIOFREEZE (to cool) or MAMA BEAR OASIS or BADGER SORE MUSCLE RUB (warmth) followed by LIDOCAINE CREAM. All these available on Amazon. Also Helpful, when I can get mindful massage of feet and ankles. ALSO, ICE PACKS are especially useful when pain, burning out of control or AM in bed to cut pain or PM to cool, stop pain so that I can see. Also use Funginail 2x day. Not sure it helps nails, but helps skin pain under and between toes. Important to keep moving as much as possible. Being bed bound only makes neuropathy worse. Also, find type of socks that provide comfort. Add crew compression socks help too.
Make sure to include additional
vitamins B and D in your day.
Finally, find something that greatly interests you. In my case, it is reading of all types and being around my infant grandchildren. While I cannot lift/carry them, I play on the floor w them and read to them! It is wonderful therapy. Also pets, dogs and cats, can provide comfort…maybe a cockatiel too!