Is it safe to stop Csmzyos for 6 days?

Posted by newtosohcm @newtosohcm, Jul 16 10:37am

I got Covid and started Paxlovid. Therefore was told to hold Camzyos. How does that affect my heart condition?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

newtosohcm | @newtosohcm | Jul 16 10:42am

(typo) That should have read Camzyos

brumasterj | @brumasterj | Jul 16 12:57pm

Those are discussions you and your prescribing cardiologist and camzyos team should having:) although camzyos is said to have a good half life
I started noticing symptoms with in a week of stopping:)
Best of luck

Debra, Volunteer Mentor | @karukgirl | Jul 17 9:59am

@brumasterj is very correct @newtosohcm, I would ask your cardiologist or the pharmacist that question.
I would be anxious too, if I was on Camzyos and told to stop. I'd worry about all those annoying symptoms coming back from HOCM.
Are you feeling better now? Have you contacted your DR?

dbruskin | @dbruskin | Jul 17 11:14am

When I got Covid I was told not to take Paxlovid and to take Legevrio instead

joanallione | @joanallione | 3 days ago

In reply to @dbruskin "When I got Covid I was told not to take Paxlovid and to take Legevrio instead" + (show)

They told me that it didn’t matter if you stopped for a while because it stays in your blood so long. I had run out of pills for a complicated reason I won’t go into. Even the first day I had a strong reaction to not having it in my system I had heart palpitations and really needed it. I found a few more pills and made it through my gap. Before I got more. So personally, I would be very hesitant to stop like that. I’m wondering how you are doing?

dbruskin | @dbruskin | 3 days ago

I’m absolutely fine. I didn’t stop the Camzyos when I took Legevrio. And it all worked out fine. I just think you cannot take Paxlovid with Camzyos but you should never stop the Camzyos