Is anyone familiar with MOTILITY clinic or doctor?

Posted by mikejjb123 @mikejjb123, Aug 7 12:14pm

I have had daily nausea for nearly 4 years. Have GERD and colitis for which I get remicade/inflimax infusions. Went to my Gastro and a surgeon who told me to get an esophageal manometry, which showed medium hiatal hernia. Also, had an endoscopy w/bravo that showed nothing abnormal. Got frustrated and sent all my records to Johns Hopkins Gastros. who told me to go to a motility clinic. Why and what is that? Ideas or other suggestions. Nausea is ruining my life. Thanks Mike

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@catmomma

Hi,

I've had gastroparesis for many years and have seen multiple specialists. I live in Iowa and have gone to Mayo/Rochester and for my regular follow-up, I use Mercy GI in Cedar Rapids. I have an inflammatory component, so I'm currently managing with Prilosec and Linzess. No easy answers for this one and no real good ones. Having been on nutrition support, I prefer to manage with diet.

I cannot stress enough how much a probiotic has helped my gastroparesis. I take it with food and apart from medications if possible, about an hour apart.

I wish you the best.

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I too take a probiotics with enzymes ( lactose intolerant) & I walk after eating…..gasx also helps.

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@peggyjean

I too take a probiotics with enzymes ( lactose intolerant) & I walk after eating…..gasx also helps.

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Peggyjean,

While these things have been game changers for me, there is still no cure for gastroparesis. Exercise also definitely helps!

Take Care!

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@catmomma

Peggyjean,

While these things have been game changers for me, there is still no cure for gastroparesis. Exercise also definitely helps!

Take Care!

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exercise helps for sure. thanks

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@peggyjean

I too take a probiotics with enzymes ( lactose intolerant) & I walk after eating…..gasx also helps.

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gotta try gasx thanks!

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@catmomma

Hi,

I try to rotate my probiotics, I have a degree in nutrition. This is a good guideline:

"A general recommendation is to choose probiotic products with at least 1 billion colony forming units and containing the genus Lactobacillus, Bifidobacterium or Saccharomyces boulardii, some of the most researched probiotics"

Cleveland Clinic (2018). How to Pick the Best Probiotic for You.

I take one that has at least 20 billion.

Best to you!

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Thank you for the info. Best to you too.

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I’ve had GERD, Esophageal Motility, Hiatal Hernia that gets fixed and returns, and Gastroparesis for years. Local Virginia hospital, Hopkins, Temple Gastro Diseases Unit. Still working on each part but I have had great success with a surgeon in Lurton, Virginia who has helped me thru the Esophageal Dismotility in the first few years and taught me how to deal with the GERD and HH issues. Unfortunately, a surgeon can’t be your daily GI doctor but I found a good one in Fair Oaks Virginia and he has me on 2 Dexilant a day, (and I use GasX for my silent nightly flare-ups); Florastor as a Probiotic, and I keep bowel prep stuff around for the constipation that can go with the Gastroparesis (when I’m not having IBS flares). Seem that what I’m taking is a hybrid mix of what everyone else is.

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@brendaharvey

Thanks so much. My daughter will drive with me. I have a niece and family in Annapolis so I will get to visit with them.
Just 56 miles away.

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I think you, Brenda, and Mike, May have just shortened my drive to a good Gastro guy. I’ve been going all the way from the Delaware coast to Northern VA for Gastro problems because once you set foot on the Eastern Shore of the DELMARVA healthcare quality drops off significantly. Luther villa is no further than western Baltimore, which is where I’m going to an orthopedic specialist. THANK YOU BOTH.

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