Relief from nausea

Posted by clutch @clutch, Dec 4, 2019

I have been tapering klonopin,switched to valium, for a year now. Have come a ways but still have a way to go. Nausea was one of the biggest issues, with resultant appetite and weight loss.
Tried the usual Rx (zofran, phenegran, compazine), and also ginger and CBS tincture. None worked over time. So I was lucky to get myself referred to a Symptom Specialist at Duke. He prescribed 15 remeron and 2.5 mg zyprexa. This was too sedating, so I cut these back to a tolerable dose, taken at night. The combination works better than anything I've tried.
If I have episodes during the day, I take .625 mg. zyprexa. Appetite and weight have improved.
Hope this will help someone else who is in "nausea hell".
Would like any feedback. Thanks!

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Profile picture for mikejjb123 @mikejjb123

thank you so much. Currently on dexlanscoprazole. Prior taken promethiazine,zofran, pantoprozole and Ondansetron Hydro with no luck.

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Got it. These meds didn’t help me long term, either. Consider the alternatives and talk with PCP about off-label meds. Let me know what you find.

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Profile picture for clutch @clutch

Got it. These meds didn’t help me long term, either. Consider the alternatives and talk with PCP about off-label meds. Let me know what you find.

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Thanks! Will do

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Profile picture for mikejjb123 @mikejjb123

I have chronic daily nausea. Seen a Gastro and had all possible tests which came back negative. Now told nausea not related to the GERD. Not sure of next steps. Even had my gallbladder tested. I have colitis but it is under control. What kind of dr should I see next? Internist? Neurologist? Thanks. I am lost and confused.

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Try pepcid complete
Not eating late
I wish you well
Your regular doctor should be able to help

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I have had daily nausea for nearly 4 years. Have GERD and colitis for which I get remicade/inflimax infusions. Went to my Gastro and a surgeon who told me to get an esophageal manometry, which showed medium hiatal hernia. Also, had an endoscopy w/bravo that showed nothing abnormal. Got frustrated and sent all my records to Johns Hopkins Gastros. who told me to go to a motility clinic. Why and what is that? Ideas or other suggestions. Nausea is ruining my life. Thanks Mike

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Profile picture for mikejjb123 @mikejjb123

I have had daily nausea for nearly 4 years. Have GERD and colitis for which I get remicade/inflimax infusions. Went to my Gastro and a surgeon who told me to get an esophageal manometry, which showed medium hiatal hernia. Also, had an endoscopy w/bravo that showed nothing abnormal. Got frustrated and sent all my records to Johns Hopkins Gastros. who told me to go to a motility clinic. Why and what is that? Ideas or other suggestions. Nausea is ruining my life. Thanks Mike

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@mike121628
I know the feeling of nausea..trust me! I don’t know about Motility Clinics, but do have experience with treating nausea. What have you tried so far, including supplements ?

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Profile picture for mikejjb123 @mikejjb123

I have had daily nausea for nearly 4 years. Have GERD and colitis for which I get remicade/inflimax infusions. Went to my Gastro and a surgeon who told me to get an esophageal manometry, which showed medium hiatal hernia. Also, had an endoscopy w/bravo that showed nothing abnormal. Got frustrated and sent all my records to Johns Hopkins Gastros. who told me to go to a motility clinic. Why and what is that? Ideas or other suggestions. Nausea is ruining my life. Thanks Mike

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I go to a doctor that is a motility doctor he is Augusta medical Unv. His name is Dr. Roa Augusta, Ga

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Profile picture for mikejjb123 @mikejjb123

I have had daily nausea for nearly 4 years. Have GERD and colitis for which I get remicade/inflimax infusions. Went to my Gastro and a surgeon who told me to get an esophageal manometry, which showed medium hiatal hernia. Also, had an endoscopy w/bravo that showed nothing abnormal. Got frustrated and sent all my records to Johns Hopkins Gastros. who told me to go to a motility clinic. Why and what is that? Ideas or other suggestions. Nausea is ruining my life. Thanks Mike

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I was sent to the Motility Clinic at U of L in Louisville Ky.
Saw an ARPN who suggested an implant to trigger my stomach to empty. Sent me to a surgeon who did not even do this! They also sent me Quest Lab in Louisville
and had 13 vials of blood drawn.
Never heard from U of L . After around 6 months I messaged for results. The Motility doctor said it was all good. I have no idea if I was checked for gluten sensitivity, lactose intolerance or anything!
So I am still on the IBS C diet!
I am now on my 4th year, in pain most days, eating barely anything!
I went for PT and they were the only real help I have received!
I have a consultation scheduled for
a possibility of getting an endoscopy procedure to nip places in my stomach wall to allow me to eat “real” food again. This will be on Oct 10. So now I will travel from south central Kentucky to Maryland!! As it is now I really have no life!!!

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Profile picture for clutch @clutch

@mike121628
I know the feeling of nausea..trust me! I don’t know about Motility Clinics, but do have experience with treating nausea. What have you tried so far, including supplements ?

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My mom has GERD and it's gotten to the point where she has nausea every day and some days can't keep food down. She has been on prescription meds for acid reduction and nausea and it isn't helping. I found a supplement made up of zinc, licorice root, ginger and artichoke leaf that she will start to take today. I will let you know if it's effective. These natural ingredients are supposed to help repair the damage caused by the acid, coat the system and reduce nausea. If it turns out to be effective, I'll report back. If you have any other suggestions, I'm interested in learning more. I just have to get her off the prescription meds. They are just making things worse.

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Profile picture for 6824540 @6824540

My mom has GERD and it's gotten to the point where she has nausea every day and some days can't keep food down. She has been on prescription meds for acid reduction and nausea and it isn't helping. I found a supplement made up of zinc, licorice root, ginger and artichoke leaf that she will start to take today. I will let you know if it's effective. These natural ingredients are supposed to help repair the damage caused by the acid, coat the system and reduce nausea. If it turns out to be effective, I'll report back. If you have any other suggestions, I'm interested in learning more. I just have to get her off the prescription meds. They are just making things worse.

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I am interested in the supplement name and have a lot of the same issues. Mine started a year and a half ago with common bile duct stones. My galbladder was removed 22 years ago so kind of crazy that I am forming stones. They were removed x2 since 2021. Ever since the last procedure most nights I sleep in a recliner because of acid reflux. I have had some improvement recently. I am on Protonix twice a day . I've started to take the second dose an hour and half after dinner instead of before dinner. There is a big difference because it works through the night. Nice to be back in the bed.

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Profile picture for clutch @clutch

@mike121628
I know the feeling of nausea..trust me! I don’t know about Motility Clinics, but do have experience with treating nausea. What have you tried so far, including supplements ?

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On Dexilant now. Tried them all. Was also taking 2 famotidine (pepcid) pills a day. Someone told me to get off the famotidine, which I started doing yesterday. Had been on them for 4 years. Thanks!

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